Had my pic line implanted on Friday, doing great - just soreness in my arm. Had it implanted in order to have Kyprolis administered. After two rounds of Velcade, Dex and Revlimid, my doctors are switching me to Kyprolis, Dex and Revlimid. Zometa remains at once a month. I had many side affects from the Velcade, including Neuropathy, brain fog, fatigue, constipation. Also the bone pain never let up throughout. My blood numbers did improve, my IGG went from 5500 down to 3750. Drs. say its⦠read more
I took revlimid for about year and was in remission
For 2 a half years
Now my light chains are going up
Does anyone taking Kyprolis injection experience extreme burning?
Can anyone share any light as to what happens in the long run to someone with multiple myeloma?
Wow Ed. You are doing fantastic ππ
I hear it could cause heart issues and Dr says I will need to be monitored regularly with EKG to see if my base line changes. Is anyone currently taking this new drug?
Thanks,
Jim
Doc recommended Kyprolis for consolidation therapy along with Darzalex and Dexamethasone.
ππΌ
Has anyone who is on Velcade and Dex and Xgeva experienced shortness of breath when climbing stairs or exerting ones self? Our doctor knows about this, and has recommended an Echo cardiogram, which we will do, but we're wondering if it's med related and not heart related.
Already this has stopped working. I'm on 3 mg. I Switched to this a couple months ago when Daratumamab and Revlimid stopped working.
Hey Becca, yes I had Kyprolis back in 2017. I took it with Pomalyst and dexamethasone. Sadly my numbers doubled on this protocol. So it didn't work for me. I haven't had CAR t. I am studying the pros⦠read more