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Does anyone taking Kyprolis injection experience extreme burning?
Can anyone share any light as to what happens in the long run to someone with multiple myeloma?
Everyone is different. It's hard to say. Your doctor is the best person to discuss this with. Your journey will depend on so many things. Read what you can and ask questions. I don't know what my own… read more
Had my pic line implanted on Friday, doing great - just soreness in my arm. Had it implanted in order to have Kyprolis administered. After two rounds of Velcade, Dex and Revlimid, my doctors are switching me to Kyprolis, Dex and Revlimid. Zometa remains at once a month. I had many side affects from the Velcade, including Neuropathy, brain fog, fatigue, constipation. Also the bone pain never let up throughout. My blood numbers did improve, my IGG went from 5500 down to 3750. Drs. say its… read more
I was on Krypolis for awhile and did fine with it. I can’t think of any real problems I had. Hopefully it will be smooth sailing for you as well.:)
I hear it could cause heart issues and Dr says I will need to be monitored regularly with EKG to see if my base line changes. Is anyone currently taking this new drug?
Thanks,
Jim
I’ve been taking Ninlaro for 1 year and my numbers are creeping up. My Dr said they are fluctuating. To me that means up and down.
If you’ve taken Ninlaro, Dex and Revlimid how long did it work for you?
She even said to me she believed that the Revlimid was keeping the numbers stable. Well apparently not.
I’m scared of new medicine that’s going to knock me on my butt again.
Beautiful photo.
How long have you taken it? what side affects have you had?
I had SCT January of 2022, and did fine for 6 months, had gallbladder removed and have not been ok since, they took me off maintenance therapy due to diarrhea I am having and now I’m told myeloma is back! I’m supposed to start on kyprolis soon and am quiet worried on how I will feel!
Hi All
My Regimen is changing.
Starting Wednesday Darzalex Faspro and Kropolis IV infusion 30 minutes. No more oral meds as they stopped working. I feel scared, hopeful, sad and anxious.
I have Light Chain IgG Kappa Multiple Myeloma.
Please share your comments and side effects as well as how the medications helped to make the numbers go down how quickly. I know this is no easy fix. Two years in the process. Do you feel better taking the above mix. PS they are also adding me back to 20… read more
Hi
I did tried all those drags
Now on krypolis
Look like your doc gives few harsh drags together to have your #’ s under control . You also say that your #’s dropped
Now , we all know that those… read more
Yes, I was on Kyprolis and Pomalyst with dexamethasone in 2017. I didn't have a good response to it, but I tolerated it okay. It did make my blood pressure go up a little. So maybe monitor your blood… read more
Hello out there!!
I just had to switch off Revlimid because I broke out with terrible hives, and now my oncologist wants me to try Carfilzomib. Has anyone out there been on or is being treated with this drug. If so then I would love your feedback!!
Pros and Cons.