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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Kyprolis"

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Re: Kyprolis
A MyMyelomaTeam Member asked a question 💭

Does anyone taking Kyprolis injection experience extreme burning?

Can anyone share any light as to what happens in the long run to someone with multiple myeloma?

A MyMyelomaTeam Member

Everyone is different. It's hard to say. Your doctor is the best person to discuss this with. Your journey will depend on so many things. Read what you can and ask questions. I don't know what my own… read more

Oncologist Is Switching Me From Velcade To Kyprolis, What Should I Expect.
A MyMyelomaTeam Member asked a question 💭

Had my pic line implanted on Friday, doing great - just soreness in my arm. Had it implanted in order to have Kyprolis administered. After two rounds of Velcade, Dex and Revlimid, my doctors are switching me to Kyprolis, Dex and Revlimid. Zometa remains at once a month. I had many side affects from the Velcade, including Neuropathy, brain fog, fatigue, constipation. Also the bone pain never let up throughout. My blood numbers did improve, my IGG went from 5500 down to 3750. Drs. say its… read more

A MyMyelomaTeam Member

I was on Krypolis for awhile and did fine with it. I can’t think of any real problems I had. Hopefully it will be smooth sailing for you as well.:)

Anyone Taking Kyprolis Which Is Similar To Velcade But Can’t Take Anymore Since Gave Me Neuropathy Called Kyprolis
A MyMyelomaTeam Member asked a question 💭

I hear it could cause heart issues and Dr says I will need to be monitored regularly with EKG to see if my base line changes. Is anyone currently taking this new drug?
Thanks,
Jim

A MyMyelomaTeam Member

I was on Velcade , then switched to Kyprolis, which was not as effective as Velcade. Had no side effects with Kyprolis. Am now back on Velcade Injectable, which works better,

Has Anyone Been On Ninlaro After SCT?
A MyMyelomaTeam Member asked a question 💭

I’ve been taking Ninlaro for 1 year and my numbers are creeping up. My Dr said they are fluctuating. To me that means up and down.

If you’ve taken Ninlaro, Dex and Revlimid how long did it work for you?

She even said to me she believed that the Revlimid was keeping the numbers stable. Well apparently not.

I’m scared of new medicine that’s going to knock me on my butt again.

A MyMyelomaTeam Member

Beautiful photo.

What Info Do You Have About Kyprolis?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

How long have you taken it? what side affects have you had?

How Has Kyprolis Affected You With Side Effects
A MyMyelomaTeam Member asked a question 💭
Kyprolis
A MyMyelomaTeam Member asked a question 💭

I had SCT January of 2022, and did fine for 6 months, had gallbladder removed and have not been ok since, they took me off maintenance therapy due to diarrhea I am having and now I’m told myeloma is back! I’m supposed to start on kyprolis soon and am quiet worried on how I will feel!

A MyMyelomaTeam Member

I was on kyprolis, Pom and dex in a clinical trial until I got COVID pneumonia in Nov 2020. After missing 2 mos of therapy, my light chains were shooting up. My onc didn't want to put me back on kyproread more

What Happens With Daratumamab And Kropolis Side Effects And "Numbers"
A MyMyelomaTeam Member asked a question 💭

Hi All
My Regimen is changing.

Starting Wednesday Darzalex Faspro and Kropolis IV infusion 30 minutes. No more oral meds as they stopped working. I feel scared, hopeful, sad and anxious.

I have Light Chain IgG Kappa Multiple Myeloma.

Please share your comments and side effects as well as how the medications helped to make the numbers go down how quickly. I know this is no easy fix. Two years in the process. Do you feel better taking the above mix. PS they are also adding me back to 20… read more

A MyMyelomaTeam Member

Hi
I did tried all those drags
Now on krypolis

Look like your doc gives few harsh drags together to have your #’ s under control . You also say that your #’s dropped
Now , we all know that those… read more

Has Anyone Taken Kyprolis (generic For Carfilzombib). In Addition Pomalyst> I Start Taking These Tomorrow
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Yes, I was on Kyprolis and Pomalyst with dexamethasone in 2017. I didn't have a good response to it, but I tolerated it okay. It did make my blood pressure go up a little. So maybe monitor your blood… read more

Carfilzomib
A MyMyelomaTeam Member asked a question 💭

Hello out there!!
I just had to switch off Revlimid because I broke out with terrible hives, and now my oncologist wants me to try Carfilzomib. Has anyone out there been on or is being treated with this drug. If so then I would love your feedback!!
Pros and Cons.

A MyMyelomaTeam Member

I was on the (VRD) Velcade, Revlimid, Dexamethasone regimen, The Revlimid was stopped after I had the allergic reaction (yes - stopped for 10 days tried it again - much worse). The Velcade was… read more