Had my pic line implanted on Friday, doing great - just soreness in my arm. Had it implanted in order to have Kyprolis administered. After two rounds of Velcade, Dex and Revlimid, my doctors are switching me to Kyprolis, Dex and Revlimid. Zometa remains at once a month. I had many side affects from the Velcade, including Neuropathy, brain fog, fatigue, constipation. Also the bone pain never let up throughout. My blood numbers did improve, my IGG went from 5500 down to 3750. Drs. say its… read more
I hear it could cause heart issues and Dr says I will need to be monitored regularly with EKG to see if my base line changes. Is anyone currently taking this new drug?
Has anyone who is on Velcade and Dex and Xgeva experienced shortness of breath when climbing stairs or exerting ones self? Our doctor knows about this, and has recommended an Echo cardiogram, which we will do, but we're wondering if it's med related and not heart related.
I’ve been taking Ninlaro for 1 year and my numbers are creeping up. My Dr said they are fluctuating. To me that means up and down.
She even said to me she believed that the Revlimid was keeping the numbers stable. Well apparently not.
I’m scared of new medicine that’s going to knock me on my butt again.
Already this has stopped working. I'm on 3 mg. I Switched to this a couple months ago when Daratumamab and Revlimid stopped working.