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I've started getting a monthly infusion of Ig immunoglobulin. I've heard this might also help relieve neuropathy symptoms. Anyone have any experience with this?
I guess then the answer is that the IVIg does not help with neuropathy. Thanks.
I am seeking affordable IVIG. Dr has prescribed but insurance has denied preauthorization and appeal.
I found an article in HEALTHTREE.ORG that speaks to IVIG preventing myeloma cell growth and actually killing myeloma cells. As I am still smoldering, this line of treatment speaks to me. https://healt… read more
For those getting IgIVs…
What are your typical IgG levels before and after?
How long before you need another and what’s your IgG when it’s time for another?
Has anyone found ways to boost their IgG levels without an IgIV infusion?
Any comments about the effectiveness of the IgIV?
Any complications from getting the IgIV?
Thanks
Interesting question Wendell thanks for asking it here, my IgG is always low 4.5 and I was going to ask my immunologist about IVIG I’m also IgA kappa that shows 2 pos traces on serum electrophoresis… read more
I had no side effects from the Polygam, but did get another infection almost immediately. Praying the Polygam kicks in soon
I’m
Going to get fusion for my low antibodies. Is this common for myeloma patients. I can’t fight off infections.
I am getting the infusions. I get it once a month. I am sick all the time.
I’ve only had 2 of them and I’m
Doing well. It is worth it.
My SEP has shown this for last 3 months. I know it shows that patient is prone to infections but other than that very little. Dr. does not seem concerned. Does anyone have experience with and /or more knowledge of this?
Thank you, Peter, for this info re myelomacentral.
Medicare will only approve IVIG infusions if one has had or is undergoing a treatment for this or meets another criteria before approving IVIG infusions, but most Smoldering Myeloma patients undergo no treatments.
B Cell reduction is essentially chemo for Myeloma. But most docs don't want to do chemo for Smoldering.
My doctor attaches a smaller needle and they kind of continuously lightly pinch the area around the shot. I didn’t have a mark/bruise last week!
Yes, according to the information available, some people with myeloma do use IVIG treatment. It's administered via intravenous infusion typically once a month, especially when antibody levels are low… read more
