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Been in debilitating pain/back spasms since mm meds were changed 7 weeks ago. Was on revlimid which stopped working unexpectedly Now taking Dara, Pomalyst and on day of injection, I take dex.
Just to share I’ve been taking chewable B-12 5000 mcg for ten days and honestly feel I have more energy. I’ll comment back at 30 days. If you do try let me know what your experience is. And please check with your doctor before taking. Certainly don’t want it to interfere with your treatment meds. Happy 4th of July! 🇺🇸
I don't take the chewables but I found a non drug, B-6/B12/Folic/and Potassium supplement, made by Excedrin, of all companies. I don't know if it's helping yet. It's a one a day but I take two… read more
Does anyone take turkey tail mushroom supplements for mm. My palliative care doc takes it for his cancer and said it may be beneficial to me. I’ve been taking it for a while and I seem to have some tummy distress. What’s your experience
I started taking Host Defense turkey tail mushroom and Dr Beckers BioNutrients mushroom complex and cordyceps mushroom supplements and have noticed a great improvement in my back pain and I noticed a… read more
My husband’s biggest problem that interferes with everyday life is low back pain. He has had multiple vertebrae and rib fractures, which have all healed. He had one Kyphoplasty early on before he was actually diagnosed with MM, which actually led to MM diagnose. Have tried diagnostic facet injections without any success. Now in acupuncture. Have been on multiple opiods which provide some relief, but have their own set of issues.
My husband had to have a metal rod put from hip to knee. Very painful, but ok now thank God
Unable to walk after starting RVD. Almost 8 months
Several have reported positive results from using curcumin; we'd like recommendations for deciding how/where to purchase and what dosage.
Hoping with you that you stay negative, Larry! Ron's civilian doctor's perspective was negative on MRD testing, but since induction therapy didn't take his numbers down all the way to normal we didn't… read more
Yes
It is a monotherapy for relapsed multiple myeloma. I get the infusion once/month.
I'll find it. Calling is a good suggestion. Thanks again.
Barbara
Oh yes, I get massive cramps in my calves and feet that wake me up in the middle of the night. I started taking a produce called Calm, which is magnesium in powder form. It does help. I also keep… read more
I also had osteonecrosis of my left lower jaw. A reasonably-sized piece of bone came off, but I’ve had no further problems. That said, I can never be given any bone strengthening meds, whether… read more