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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Interferon"

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I Am An Alcoholic. And I Have Recently Stopped Drinking. Drinking Just Made Me Feel Worse. Does Any One Still Drink.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I am so happy you stopped! I have a family full of Alcoholics and it just made everything worse. Will all the meds you might be taking, it is very wise to get off alcohol all together. You don't know… read more

M Spike Rising
A MyMyelomaTeam Member asked a question 💭

When has your oncologist changed your treatment when your m spike rises. Mine started in July 2022 to .05 now in October 2022 it is .10
I contacted mt oncologist about this after I received the lab results but I haven’t received a response from him yet
My oncologist office has grown so large that I feel like I am just a number on a conveyor belt. Even though they are a hematology oncology office, I feel they give all their priority to breast and colon cancers. Don’t get me wrong they are… read more

A MyMyelomaTeam Member

One thing I have learned. Don't let them ignore you. No call back? Call every day. Multiple times a day. Then visit the office if you can. No anger, just persistence. They'll get the message.

Can Anyone Share What Type (if Any) Of Orthopedic Procedures You Had Treating Bone Damage Acquired Due To MM.
A MyMyelomaTeam Member asked a question 💭

My husband’s biggest problem that interferes with everyday life is low back pain. He has had multiple vertebrae and rib fractures, which have all healed. He had one Kyphoplasty early on before he was actually diagnosed with MM, which actually led to MM diagnose. Have tried diagnostic facet injections without any success. Now in acupuncture. Have been on multiple opiods which provide some relief, but have their own set of issues.

Has Anyone Tried The Joe Tippens Protocol? I’m Interested In Hearing Your Response To This Protocol. Thank You!
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Sorry, NED is No Evidence of Disease
My numbers were looking better after 5 months of chemotherapy. My oncologist subsequently labeled me NED and removed Revlimid from my treatment but kept me on Veread more

Joe Tippens Protocol
A MyMyelomaTeam Member asked a question 💭

Is anyone using the Joe Tippens Protocol…

Is so, what was your condition when you started it (such as Stage, percentage bad plasma, original diagnosis or after one or more relapses, etc)?

Did it work?

Why that path (such as others failed)?

What specifically are you taking - items, doses, frequency, etc.?

Problems or side effects?

Simply doing research in the event of a future relapse (MRD- at this time).

Thanks

A MyMyelomaTeam Member

Larry
Once when I was young my mother gave us a concoction that had garlic and peanut butter and I don’t know what else. Looking back it had to be for parasites. We lived in the Sierras and drank… read more

Covid Booster
A MyMyelomaTeam Member asked a question 💭

What are your views on the Covid boosters. I had mild Covid while I was boosted and I need to decide if I want another shot. Things are coming out about serious problems caused by the shot but my immunity is low. So what’s everyone’s opinion

A MyMyelomaTeam Member

I couldn't even start this let alone finish it

Hi Just Wanted To Ask Is There A Good Time To Take Revlimid And Dexamethasone Thanks
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I take my Revlimid at late evening with a little Greek yogurt dexamethasone should be taken as directed by your oncologist.

Fenbendazol And Ultra Botanica Products
A MyMyelomaTeam Member asked a question 💭

Is anyone taking these Products - their Pathway 1, 2, 3 and using the Joe Tippens Protocol?

If so, with what success and side effects?

At first glance it seems a bit “out-there” but they refer to a Johns Hopkins Case Study where Fenbendazol helps with a deadly brain cancer that’s been difficult to treat.

My first impression is Fendendazol may make sense in hopeless cases with nothing to lose.

Separately, the Pathway products claim to have higher absorption due to their LPS Technology… read more

A MyMyelomaTeam Member

When I began treatment 12/2022 I heard about Fenben, wasn't going to trial since there was no literature on whether it's really legitimate
Meantime with quad trtmt, much improved labs in 3 months. I… read more

Has Anyone Tried The Liquid Liposomal Curcumin By Manna?
A MyMyelomaTeam Member asked a question 💭

Has anyone tried the liquid Liposomal Curcumin by Manna? I'm seeing it advertised a lot on FB. I think I would prefer a pill, though but hope to hear some reviews on whatever Liposomal Curcumin people like. I just had a PET scan last week and have a degenerative spine, apparently. Not ever having terrible pain, more discomfort and hard bending down so I think I'd like to try the Liposomal Curcumin finally. Thanks.

A MyMyelomaTeam Member

Hi Linda5 - For now I’m going forward with CurQfen. Ordered 10 bottles. Intend to take 6 pills daily, split across 3 doses of 2 each. This will cover 100 days and I’m setup for reorders every 90 days… read more

C3 Curcumin
A MyMyelomaTeam Member asked a question 💭

Several have reported positive results from using curcumin; we'd like recommendations for deciding how/where to purchase and what dosage.

A MyMyelomaTeam Member

Hi SyedM - Thanks for posting this Link. It covers quite a large amount of MM Cases - up to 60% bad plasma, allowing for a MSpike of greater than 3.0,

Hopefully this will be helpful support to the… read more