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I am so happy you stopped! I have a family full of Alcoholics and it just made everything worse. Will all the meds you might be taking, it is very wise to get off alcohol all together. You don't know… read more
When has your oncologist changed your treatment when your m spike rises. Mine started in July 2022 to .05 now in October 2022 it is .10
I contacted mt oncologist about this after I received the lab results but I haven’t received a response from him yet
My oncologist office has grown so large that I feel like I am just a number on a conveyor belt. Even though they are a hematology oncology office, I feel they give all their priority to breast and colon cancers. Don’t get me wrong they are… read more
One thing I have learned. Don't let them ignore you. No call back? Call every day. Multiple times a day. Then visit the office if you can. No anger, just persistence. They'll get the message.
My husband’s biggest problem that interferes with everyday life is low back pain. He has had multiple vertebrae and rib fractures, which have all healed. He had one Kyphoplasty early on before he was actually diagnosed with MM, which actually led to MM diagnose. Have tried diagnostic facet injections without any success. Now in acupuncture. Have been on multiple opiods which provide some relief, but have their own set of issues.
Sorry, NED is No Evidence of Disease
My numbers were looking better after 5 months of chemotherapy. My oncologist subsequently labeled me NED and removed Revlimid from my treatment but kept me on Ve… read more
Is anyone using the Joe Tippens Protocol…
Is so, what was your condition when you started it (such as Stage, percentage bad plasma, original diagnosis or after one or more relapses, etc)?
Did it work?
Why that path (such as others failed)?
What specifically are you taking - items, doses, frequency, etc.?
Problems or side effects?
Simply doing research in the event of a future relapse (MRD- at this time).
Thanks
Larry
Once when I was young my mother gave us a concoction that had garlic and peanut butter and I don’t know what else. Looking back it had to be for parasites. We lived in the Sierras and drank… read more
What are your views on the Covid boosters. I had mild Covid while I was boosted and I need to decide if I want another shot. Things are coming out about serious problems caused by the shot but my immunity is low. So what’s everyone’s opinion
I couldn't even start this let alone finish it
I take my Revlimid at late evening with a little Greek yogurt dexamethasone should be taken as directed by your oncologist.
Is anyone taking these Products - their Pathway 1, 2, 3 and using the Joe Tippens Protocol?
If so, with what success and side effects?
At first glance it seems a bit “out-there” but they refer to a Johns Hopkins Case Study where Fenbendazol helps with a deadly brain cancer that’s been difficult to treat.
My first impression is Fendendazol may make sense in hopeless cases with nothing to lose.
Separately, the Pathway products claim to have higher absorption due to their LPS Technology… read more
When I began treatment 12/2022 I heard about Fenben, wasn't going to trial since there was no literature on whether it's really legitimate
Meantime with quad trtmt, much improved labs in 3 months. I… read more
Has anyone tried the liquid Liposomal Curcumin by Manna? I'm seeing it advertised a lot on FB. I think I would prefer a pill, though but hope to hear some reviews on whatever Liposomal Curcumin people like. I just had a PET scan last week and have a degenerative spine, apparently. Not ever having terrible pain, more discomfort and hard bending down so I think I'd like to try the Liposomal Curcumin finally. Thanks.
Hi Linda5 - For now I’m going forward with CurQfen. Ordered 10 bottles. Intend to take 6 pills daily, split across 3 doses of 2 each. This will cover 100 days and I’m setup for reorders every 90 days… read more
Several have reported positive results from using curcumin; we'd like recommendations for deciding how/where to purchase and what dosage.
Hi SyedM - Thanks for posting this Link. It covers quite a large amount of MM Cases - up to 60% bad plasma, allowing for a MSpike of greater than 3.0,
Hopefully this will be helpful support to the… read more