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I’m taking revlimed and 2chemo shots. I feel so overmedicated unsteady weak basically I would rather sit all day than get up and move around. Is that normal fatigue is really effects my daily like. I only go out once a week for treatment. I’m just comfortable at home. Any thoughts
Larry our stories aren’t much different. I’m on 15 of revlimed for 3 weeks and I off. I enjoy the energy for the 2day buzz I get. That’s when I get my housework and fish tank cleaned cuz after that I… read more
I’m 1 year 1 month post SCT. It’s a battle. I’d say for me it was three months or so. That’s when I started driving locally. However I’m not my Old self. Starting PT tomorrow to start strength… read more
My doctor prescribed Gabapentin to help, but the neuropathy doesn’t seem much better. I am trying to build strength and not need a walker to get around since my hospital,stay for pneumonia, but the “pillow feet” make me uneasy. Both feet feel numb.
Has anyone found something that helps more with the neuropathy?
I am in the process of getting an Autologous SCT. I have to admit it's been a bigger life event than I expected. Currently I am on Day 9-since stem cell infusion. Fortunately-a lot of the side effects from chemo-like diarrhea and muscle aches, etc. have greatly reduced. I am of course still very tired and dizzy at times ( related to low BP) My WBC count seems to be very slowly creeping up-now at .26-and am getting Neupogen shots. My red blood cells are on the low side-but not to serious and… read more
My feelings exactly! I have enough cell for another one if I need. So far doing great! I did change Alittle how I eat. I try to eat lots of fruit and veg foods that are chemical free. I know they said… read more
I suffer from sciatic badly, i also have myasthenia gravis, and walking exacerbates this illness. It is so easy for someone to give advise, when they are not suffering, The dex can definitely cause… read more
My husband was diagnosed in April of 2019 and went into remission within six months. His most recent (done 3 months ago) PET and Bone Marrow Biopsy showed no myeloma cells present anywhere. He has always experienced some lower back pain which he usually described as being 2 on a scale of 10, but recently he has complained of a lot more pain in the 5-6 range. His oncologist suspected a broken rib, so ordered an x-ray, but no broken ribs were showing. His oncologist suggested maybe going to… read more
I had and continue to have back pain but it’s getting better. Induction meds are extremely muscle wasting. In my case, so much so in my arms and legs that I needed a walker and transport chair (no… read more
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