I have Multiple Myeloma and have been on Darzalex/Revlimid/Dexamethasone for over a year now. My Myeloma numbers have dropped into the normal range so we have decided to drop my Revlimid dose from 25mg to 10 mg and monitor.
It has been suggested to me that I get a full body MRI with DWI images to ascertain if there is any Myeloma bone involvement even though my Myeloma numbers are good. This makes sense to me, I haven’t had any imaging done for over a year.
My oncologist is receiving push… read more
I am going on medicare in December and I have been paying $10.00 for my Revlimid because I have medical coverage through my employer . On Medicare its$1700 per month( give or take). I do not qualify for assistance with Healthwell . I make just over the amount for assistance . With part D ,I have to spend over $6000 in order to exit the medical , then I was told it will be $894 per month. Does anyone know how to get a lower cost?or how to navigate a better plan with medicare?
I’m scared to death that this will make me ineligible for ASCT. + IGM, + IGG, + EBNA. Anyone know about this? Of course I find this on my patient portal on a Friday night!
I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.
I've yammered a lot already about having an existing cancer -- told it's not related to whatever stage of Myeloma I may be. But symptoms of both seem to potentially "overlap". Ergo I get The Shrugs right now, when I ask if they're Myeloma-related.
New: deep bone pain that makes me snivel, far beyond what I've been told is arthritis. Lumbar; hips; fanny to shins; neck (my eldest grandson, 5, says I look like "Robo-Greema" because I have to now turn my whole body vs just my big fat head). Ribs… read more