Connect with others who understand.

sign up log in
About MyMyelomaTeam
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 6 Search Results for "Erythropoietin (EPO)"

reset

Revlimid Costs

Revlimid Costs

I am going on medicare in December and I have been paying $10.00 for my Revlimid because I have medical coverage through my employer . On Medicare its$1700 per month( give or take). I do not qualify for assistance with Healthwell . I make just over the amount for assistance . With part D ,I have to spend over $6000 in order to exit the medical , then I was told it will be $894 per month. Does anyone know how to get a lower cost?or how to navigate a better plan with medicare?

A MyMyelomaTeam Member said:

Wow, that a lot to me. I'm on disability, I have Medicare. Was diagnosed in 2017. I've had chemotherapy. For this year my deductible is payed and my meds is covered. No pit of pocket. I just pay 35… read more

posted 28 days ago

I’m Scheduled For ASCT, But Have A Positive Epstein Barr Test.

I’m Scheduled For ASCT, But Have A Positive Epstein Barr Test.

I’m scared to death that this will make me ineligible for ASCT. + IGM, + IGG, + EBNA. Anyone know about this? Of course I find this on my patient portal on a Friday night!

A MyMyelomaTeam Member said:

Additional DNA/PCR testing was negative! Now on Nivestym and on my way to ASCT.

posted 7 months ago

Does Anyone Have Experience With Aetna Medicare Advantage Plan? Just Found Out We Are Being Switched February 1.

Does Anyone Have Experience With Aetna Medicare Advantage Plan? Just Found Out We Are Being Switched February 1.

A MyMyelomaTeam Member said:

Yes Previously had MVP. Very pleased with that. My former employer changed the retiree insurance to Aetna. So far only copays when we see doctor ($15) and same even if we are out of network. So… read more

posted almost 2 years ago

Maintenance Therapy After Stem Cell Transplant

Maintenance Therapy After Stem Cell Transplant

I am in remission after stem cell transplant but I was prescribed Revlimid as maintenance therapy. I have to take it until relapse. What is your experience with this medication.

A MyMyelomaTeam Member said:

And I was doing good with pain until a couple of months ago, pain in my hips and upper thigh , is that where Claritin helps is with pain ?

posted 5 days ago

Am I "symptomatic", And What Might That Mean?

Am I "symptomatic", And What Might That Mean?

I've yammered a lot already about having an existing cancer -- told it's not related to whatever stage of Myeloma I may be. But symptoms of both seem to potentially "overlap". Ergo I get The Shrugs right now, when I ask if they're Myeloma-related.

New: deep bone pain that makes me snivel, far beyond what I've been told is arthritis. Lumbar; hips; fanny to shins; neck (my eldest grandson, 5, says I look like "Robo-Greema" because I have to now turn my whole body vs just my big fat head). Ribs… read more

A MyMyelomaTeam Member said:

Hope you get some answers

posted about 1 year ago