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Disease has changed form. Will the same medications be working for the same . Will Darasumab work. Any clinic reasearch or studies on the same. Pls connect to me here or email me on (Email address can only be seen by MyMyelomaTeam users) to help. Need to connect and understand this better.
Oncologist is suggesting the same treatment as Myloema only. We are chemotherapy with Bortidumab and Lipodox and Cyclophosphamide. He is looking to add Dara to the schedule. Just wanted to understand… read more
Is it possible to send a direct message, private message or email to another member without posting it publicly?
I have the same question.
Has anyone found a USP verified Curcumin Complex 3 with Piperine?
I finally found the USP verified 95% curcuminoids and 10mg bioperine in brand" Youtheory" Turmeric. It's expensive to take the full 6000mg a day, about $75/month, but worth it to know it's real and… read more
Thanks, will look into it right now.
I have not been able to see my Myeloma specialist, Dr Sagar Lonial at Emory in over 2 years because in 2020 I was in the hospital here having surgery for a twisted small intestine & in 2021 I had fallen & had to have a hip replacement. I am just not able to make the trip anymore to Emory & I have not had a BMB or any of my yearly tests since 2019. I need to know if anyone knows a good Myeloma Specialist in the Birmingham area as I am only about 10 miles from UAB hospital. My Dr at Grandview… read more
They are good, that's where I had my stem cell transplant almost three years ago, I haven't had any problems so far, thank God.
I've had all my shots, followed the CDC guidelines, and have not had COVID.
Recent research is saying seniors do just as well without dexa in treating mm. Anyone know more about this?
I get 12mgs of Dex every week with my chemo
Has anyone found a good form either online or printable to track myleoma blood work
Thanks for all the great responses😀
How do you deal with the isolation?
You do have to wait as the childhood shots MMR are derived from live viruses. Can't have that for at least a year as your immune system is still compromised
Employment Question
I am wondering what are some employment options others with MM have chosen that has been successful while attending to their health issues. I stopped working in December to focus more on my health. Although I do not take chemo or other meds, I am not in remission. I am maintaining good outcome MM numbers and lab work primarily through nutrition, supplements, and other lifestyle changes. I am currently working on managing constant bone pain without taking opioids. I do not… read more
Usually small disease means low income large income means huge diseases। Mm usually comes after well sustained wealth rather dipression of future kills। It's very difficult to bet on me being able to… read more