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So Four Years In And It Seems I Now Need To Change My Drugs Away From Revlimid. What Are My Options?

A MyMyelomaTeam Member asked a question 💭
Las Cruces, NM
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A MyMyelomaTeam Member

If you have become refractory to Revlimid, then the other IMIDS will probably not work. Depending upon your cytogenetics, you could use Venetoclax (t11,14) or go with a CAR-T. Make sure you are… read more

What Defines Remission? Does It Require A Complete Absence Of M Proteins?

A MyMyelomaTeam Member asked a question 💭
Bloomington, IN

I was diagnosed with MM in September 2022 after a four year old knee replacement became infected. I started a Velcade/Dexamethasome/Revlimid regimen immediately. Had a stem cell transplant in February 2023. Restarted treatment with the addition of Daratumamab in April 2023.

My M Proteins have continued to go down, but I don't know if they have to become undetectable before I'm considered in remission.

Thanks for your wisdom.

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A MyMyelomaTeam Member

Me too! The knee has been opened three times. That's quite enough.

Is A Stem Cell Transplant Inevitable?

A MyMyelomaTeam Member asked a question 💭
Gainesville, GA

I am newly diagnosed I have stage 1 MM. doctor is putting me a few meds which is saying is a low form of chemo. and Suggested I go get stem cells ready in case I may need a SCT. Is it inevitable that as this progresses I will definitely have to do the stem cell transplant?

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A MyMyelomaTeam Member

I wish your husband great success in car t,,,I'm finished now and so far my tests have great results 0 m spike,and petscan shows no uptakes....I'm convinced this is the cure,and goodbye to my… read more