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Top 10 Search Results for "Dialysis"

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Has Anyone Been Kicked Off Social Security Disability?

Has Anyone Been Kicked Off Social Security Disability?

I'm facing losing my social security disability next month. SSD has sent me three times for medical evaluations and once for a phyc evaluation. They say I'm better and able to return to work without issues. I have five collapsed vertebrates and two fractured ribs, also walk with a cane and have nuerapathy in my hands and feet. The only way I get relief during the day from back pain is to lay down to allow it to relax. How am I to work like that.? Has anyone had to go back to work because of… read more

A MyMyelomaTeam Member said:

Greetings from Alaska Social Security disability is like that you may need a lawyer who who’s expertise is Social Security disability and have them do the fight for you because Social Security will be… read more

posted 2 months ago

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Husband's most recent cytology report from his bone marrow biopsy said "Normal Male Karyotype, no clonal abnormalities detected." A FISH analysis was not done on this biopsy, probably because there were no abnormalities, but the original Fish analysis on the biopsy done at diagnosis, showed multiple chromosome deletions and alterations, leading to a "high risk" prognosis. This is also puzzling, since we were told that "high risk" suggests that the usual therapies do not work and multiple… read more

A MyMyelomaTeam Member said:

AMEN! EVERYDAY IS A BLESSING!

posted 6 months ago

What Can I Do To Receive Insurance For A Stem Cell Transplant If I Have Esrd. Medicaid Insurance Companies Are Turning Me Down

What Can I Do To Receive Insurance For A Stem Cell Transplant If I Have Esrd. Medicaid Insurance Companies Are Turning Me Down

I have esrd and multiple myeloma. I cannot get a stem cell transplant because I have renal failure and most insurance companies will not except me because of what I have which stops everything that's going on.

A MyMyelomaTeam Member said:

Yeah the financial people at the hospital know all the things out there too help pay for treatments if you have no insurance.

posted 9 months ago

Does Anyone Else Struggle With Regulating Your Body Temperature?

Does Anyone Else Struggle With Regulating Your Body Temperature?

I am often cold, when my wife is sweating. When I was first diagnosed with MM I had lost about 60 lbs and 4 1/2” from the vertebrae breaks. Someone told me when you lose that much weight it can be hard to stay warm? Thoughts?

A MyMyelomaTeam Member said:

Thanks for the hugs

posted about 1 year ago

Hello Everyone. Brand New Member As Of Today. I Just Got A Positive M-spike. Number Turns Out To Be Low, Less Than 1.

Hello Everyone. Brand New Member As Of Today. I Just Got A Positive M-spike. Number Turns Out To Be Low, Less Than 1.

Very early in the process for me. Does just having positive results mean that I will eventually have bigger and bigger numbers or issues? I’ll be doing blood work and 24 hour urine analysis soon to see better detail. My doctor (first time to oncologist/hematologist) said I have nothing to worry about. But I can’t help but think it can only continue to progress. Am I overreacting? Or is that exactly how this works?
Thanks

A MyMyelomaTeam Member said:

Thank you! Thank you! That’s great information and fantastic advice. I go next week for follow up to see exactly where I stand. Results from oncologist/ hematologist blood and urine tests will be… read more

posted 2 months ago

New To The Site And In My 3rd Cycle Of My Treatment Plan. Taking Velcade, Revlimid, Dexamethasone, Omeprazole And Acyclovir

New To The Site And In My 3rd Cycle Of My Treatment Plan. Taking Velcade, Revlimid, Dexamethasone, Omeprazole And Acyclovir

Been fortunate I've had no side effects to this point. Feeling pretty good with daily exercise and trying to keep a positive attitude to help me through this journey.

Seems after reading a lot of the posts, most have taken the next step to do the transplant. I know everyone might be at different stages and treatment plans but just wondering if I can get some feedback as to why these decisions were done to move forward.

Understanding there is not a MM cure but remission is the goal and to stay… read more

A MyMyelomaTeam Member said:

I had my stem cell in March 2016. Once I got strength build back up I fe lol t better than I had in years! I see my Dr. Next month. I'm always scared. I love my kidneys...lol.. I went to E.R in June… read more

posted 11 months ago

CO2 Numbers Have Decreased Below Normal On Last Two CMP's. What Would Cause This?

CO2 Numbers Have Decreased Below Normal On Last Two CMP's. What Would Cause This?

CO2 two weeks ago was 21 (22-33 is normal). This week another CMP showed CO2 at 18, even lower. Has anyone else had this happen? It has dipped slightly in the past, but always came back to normal on the follow-up CMP. It has never been lower than 21, so this is very alarming. Doctor doesn't seem concerned, just says "we'll monitor". All other numbers are in normal range, no kidney problems or liver problems. He had an echocardiogram back in January which showed some minimal decreased… read more

A MyMyelomaTeam Member said:

It's all back to normal now. Thank you all.

posted over 1 year ago

T14 Found In Urine

T14 Found In Urine

Ok so next up on the things that can go wrong with me
I went to see my Dr Wed to get my results of my MM marker test. Well he said your #are coming down but we found a T14 strain of protein in your urine. It's very rare and you have some rare cell mutations. The chemo I'm giving you is very aggressive but it's not working on this. I have 2 more treatment on this round and then my last 3. I should have been done with chemo the first week in Sept. Now I'm going to have to try something else
read more

A MyMyelomaTeam Member said:

Thank you primetimegail for sharing with me

posted 9 months ago

Advice Please

Advice Please

Did you have an MRI, PET scan or CT?

A MyMyelomaTeam Member said:

I have had a Pet Scan, MRI, and a full body scan.

posted over 2 years ago

Is A Skeletal Scan Adequate As Part Of Initial Diagnostics, Or An MRI Best?

Is A Skeletal Scan Adequate As Part Of Initial Diagnostics, Or An MRI Best?

The Hema Onco I'm seeing for now (not much experience with Myeloma) ordered a Skeletal Scan: no "lytic bone lesions" noted, yay. But while researching, I've seen mention that an MRI is more effective for detecting marrow issues....? Hema poo-poo's it...

The Skeletal Scan also makes no mention of significant Lumbar/Hip findings on prior MRIs/CTs. Hips have been noted as bone-on-bone arthritis; Lumbar, whole area degenerating/stenosis/S curve/hematomas etc. Would that not appear on a Skeletal… read more

A MyMyelomaTeam Member said:

MANY thanks, John -- your mention means a great deal to me. Won't see Abdallah till late Nov...could be worse, and glad to know I'm finally barking up the right tree (wear a rose between our teeth, we… read more

posted over 1 year ago