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Does anyone here have both Multiple Myeloma and Kidney Disease? My husband has Stage 3, high risk MM and Stage4/5 kidney disease. The myeloma has damaged his kidneys. Does anyone else deal with both of these?
Remember the CRAB symptoms of MM? 'C'alcium levels growing. The R is short for Renal issues, even Renal failure. Actual, R was one of my first symptoms, and is still getting worse as we move alongā¦ read more
I have asked this before but now it has been 15 months since the SCT and things are not getting better with fatigue, concentration, insomnia and back pain. I am only 53 but since I was diagnosed 3 years ago and I have not woken up and said boy I feel good. My confusion and concentration seem to be getting worse. My numbers from the blood tests are good but this seems crazy. They tell me āwell each cancer patient is differentā I went down to 24 hours a week and no help at all. Any thoughts?
Not for me. On dialysis have to take a 3 hour nap when I get home. Other days I tire very quickly. I have not worked since Sept 2020
Thank you
Yes, I get the charley horses, too! I have to power through them, get up and walk, make sure I am hydrated enough. I am on the edge of hyperkalemia [too much potassium] and have to watch potassiumā¦ read more
I am Iswandi 61 years old from Indonesia .. I was diagnosed with MM in July 2019 .. dialysis 16 times and was given velcade dexa and revlimid (6 cycles) and declared remission. I am still actively working and playing tennis 2 times a week. Do I need to do a transplant ..
What does your specialist say? Transplant is still a good option for patients with high risk disease. Do your homework. The Healthtree Foundation and the International Myeloma Foundation haveā¦ read more
My mum is with the following levels:
Kappa chain: 50.36 mg/L
Lambda chain: 22.59 mg/L
Kappa/Lambda rate: 2.23, it should be between 0.52 and 2.42
She is with daratumumab treatment (one dosis each one or two months, depending on doctor's decision.).
After a bone marrow biopsy, she got 0.0024% of clonal plasma cell cyIgL Kappa CD38+d (crowded) CD56* CD19- CD45- CD138+ Beta2micro+ CD117- CD81- This result is equal than the last bone marrow biopsy (0.0025% one year and a half ago).
She is doingā¦ read more
Itās BP related. Sometimes when I get up in the morning I am light headed and feel woozy but never really pass out. Check BP if it is too low
Per Mayo Clinicās website:
Analysis of your urine may show M proteins, which are referred to as Bence Jones proteins when they're detected in urine.
Iām worried itās something else, my small town doctor goes so fast. Heading to MD Anderson next week for a 2nd opinion. š
I understood very little and that was from a specialist! So I understood about blood cancer and white blood cells! So I just paid attention as to how we were going to proceed! I donāt think youā¦ read more