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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Dialysis"

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What Are Side Effects From Dialysis?
A MyMyelomaTeam Member asked a question 💭

I don't have kidneys.

Multiple Myeloma And Kidney Disease
A MyMyelomaTeam Member asked a question 💭

Does anyone here have both Multiple Myeloma and Kidney Disease? My husband has Stage 3, high risk MM and Stage4/5 kidney disease. The myeloma has damaged his kidneys. Does anyone else deal with both of these?

A MyMyelomaTeam Member

Remember the CRAB symptoms of MM? 'C'alcium levels growing. The R is short for Renal issues, even Renal failure. Actual, R was one of my first symptoms, and is still getting worse as we move along… read more

I Have A More In Depth Question Below.
A MyMyelomaTeam Member asked a question 💭

I have asked this before but now it has been 15 months since the SCT and things are not getting better with fatigue, concentration, insomnia and back pain. I am only 53 but since I was diagnosed 3 years ago and I have not woken up and said boy I feel good. My confusion and concentration seem to be getting worse. My numbers from the blood tests are good but this seems crazy. They tell me “well each cancer patient is different” I went down to 24 hours a week and no help at all. Any thoughts?

A MyMyelomaTeam Member

Not for me. On dialysis have to take a 3 hour nap when I get home. Other days I tire very quickly. I have not worked since Sept 2020

Has Anyone Been In Remission And Still Can’t Work And Is On Social Security Disability? Thanks For Any Responses, Replies Would Be Awesome
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Thank you

Has Any One With M.M Had Issues With Charlie Horses. Had Multiple Last Night Moved From Thigh To Calf Than Ankles.
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Yes, I get the charley horses, too! I have to power through them, get up and walk, make sure I am hydrated enough. I am on the edge of hyperkalemia [too much potassium] and have to watch potassium… read more

Transplant
A MyMyelomaTeam Member asked a question 💭

I am Iswandi 61 years old from Indonesia .. I was diagnosed with MM in July 2019 .. dialysis 16 times and was given velcade dexa and revlimid (6 cycles) and declared remission. I am still actively working and playing tennis 2 times a week. Do I need to do a transplant ..

A MyMyelomaTeam Member

What does your specialist say? Transplant is still a good option for patients with high risk disease. Do your homework. The Healthtree Foundation and the International Myeloma Foundation have… read more

Dear All, I Know That The Question Is Really Difficult To Answer. A New Kidney Transplant With Myeloma With Kappa Chain In Low Levels?
A MyMyelomaTeam Member asked a question 💭

My mum is with the following levels:

Kappa chain: 50.36 mg/L
Lambda chain: 22.59 mg/L
Kappa/Lambda rate: 2.23, it should be between 0.52 and 2.42

She is with daratumumab treatment (one dosis each one or two months, depending on doctor's decision.).

After a bone marrow biopsy, she got 0.0024% of clonal plasma cell cyIgL Kappa CD38+d (crowded) CD56* CD19- CD45- CD138+ Beta2micro+ CD117- CD81- This result is equal than the last bone marrow biopsy (0.0025% one year and a half ago).

She is doing… read more

A MyMyelomaTeam Member

Thank you Donna.

According with the lab, these values are normal for a person who is in dialysis 3 times per week. But I am not sure if theses values will not damage the kidney in the future. Thank… read more

Does Anyone Have A Problem With Passing Out./
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

It’s BP related. Sometimes when I get up in the morning I am light headed and feel woozy but never really pass out. Check BP if it is too low

What Can We Conclude If Bence Jones Is Negative?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Per Mayo Clinic’s website:

Analysis of your urine may show M proteins, which are referred to as Bence Jones proteins when they're detected in urine.

Obsessed With Test Results And Studying Online? Did You Do That?
A MyMyelomaTeam Member asked a question 💭

I’m worried it’s something else, my small town doctor goes so fast. Heading to MD Anderson next week for a 2nd opinion. 😟

A MyMyelomaTeam Member

I understood very little and that was from a specialist! So I understood about blood cancer and white blood cells! So I just paid attention as to how we were going to proceed! I don’t think you… read more