I'm facing losing my social security disability next month. SSD has sent me three times for medical evaluations and once for a phyc evaluation. They say I'm better and able to return to work without issues. I have five collapsed vertebrates and two fractured ribs, also walk with a cane and have nuerapathy in my hands and feet. The only way I get relief during the day from back pain is to lay down to allow it to relax. How am I to work like that.? Has anyone had to go back to work because of… read more
Husband's most recent cytology report from his bone marrow biopsy said "Normal Male Karyotype, no clonal abnormalities detected." A FISH analysis was not done on this biopsy, probably because there were no abnormalities, but the original Fish analysis on the biopsy done at diagnosis, showed multiple chromosome deletions and alterations, leading to a "high risk" prognosis. This is also puzzling, since we were told that "high risk" suggests that the usual therapies do not work and multiple… read more
I have esrd and multiple myeloma. I cannot get a stem cell transplant because I have renal failure and most insurance companies will not except me because of what I have which stops everything that's going on.
I am often cold, when my wife is sweating. When I was first diagnosed with MM I had lost about 60 lbs and 4 1/2” from the vertebrae breaks. Someone told me when you lose that much weight it can be hard to stay warm? Thoughts?
Very early in the process for me. Does just having positive results mean that I will eventually have bigger and bigger numbers or issues? I’ll be doing blood work and 24 hour urine analysis soon to see better detail. My doctor (first time to oncologist/hematologist) said I have nothing to worry about. But I can’t help but think it can only continue to progress. Am I overreacting? Or is that exactly how this works?
Been fortunate I've had no side effects to this point. Feeling pretty good with daily exercise and trying to keep a positive attitude to help me through this journey.
Seems after reading a lot of the posts, most have taken the next step to do the transplant. I know everyone might be at different stages and treatment plans but just wondering if I can get some feedback as to why these decisions were done to move forward.
Understanding there is not a MM cure but remission is the goal and to stay… read more
CO2 two weeks ago was 21 (22-33 is normal). This week another CMP showed CO2 at 18, even lower. Has anyone else had this happen? It has dipped slightly in the past, but always came back to normal on the follow-up CMP. It has never been lower than 21, so this is very alarming. Doctor doesn't seem concerned, just says "we'll monitor". All other numbers are in normal range, no kidney problems or liver problems. He had an echocardiogram back in January which showed some minimal decreased… read more
Ok so next up on the things that can go wrong with me
I went to see my Dr Wed to get my results of my MM marker test. Well he said your #are coming down but we found a T14 strain of protein in your urine. It's very rare and you have some rare cell mutations. The chemo I'm giving you is very aggressive but it's not working on this. I have 2 more treatment on this round and then my last 3. I should have been done with chemo the first week in Sept. Now I'm going to have to try something else
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The Hema Onco I'm seeing for now (not much experience with Myeloma) ordered a Skeletal Scan: no "lytic bone lesions" noted, yay. But while researching, I've seen mention that an MRI is more effective for detecting marrow issues....? Hema poo-poo's it...
The Skeletal Scan also makes no mention of significant Lumbar/Hip findings on prior MRIs/CTs. Hips have been noted as bone-on-bone arthritis; Lumbar, whole area degenerating/stenosis/S curve/hematomas etc. Would that not appear on a Skeletal… read more