For those that harvested their stem cells and had a 4-6 week break from chemo during the process, did your light chains and M-spike numbers remained the same during this break, or continue to go down or went up slightly before chemo treatments started up again?

Does anyone have been on CTD treatment

What was reaction and effect?

I have taken Velcade and Cytoxin in past.What is other's experiences with these drugs,good or bad.Thanks!!!!

Hello everyone: My husband's oncologist told him "he may have chemo for a long time, until there is "some sort of remission." He has it 3 times per month...his 8th month now....How possible is this? Doesn't that stop working eventually? My husband has MM with light chain kappa and kidney failure. Not on dialysis but with a high creatinine level (1.8) and GFR at 41. The doctors he sees are all vague... They say they have "different levels of treatments" if the first one does not work. And happy… read more

I was diagnosed in June of 2020 and had a stem cell transplant in January of 2021. I have been on Revlimid and Velcade the entire time. My latest lab tests show a definite decline. I am wondering if there is another medication that people have changed to after these two quit being beneficial.

Has anyone had an appointment with Dr. William Matsui (UT Austin) or Dr. Robert Orlowski (MD Anderson Houston)? My PCP sent a referral to Dr. Matsui and I’ve been told they’re not accepting new patients. Frustrating since I live about 22 miles from Dr. Matsui’s office (Bastrop, Tx) and 2 1/2 hours from Dr. Orlowski. How does one go about finding a Doctor Who works in cooperation with the MD Anderson doctors?