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Does Any One Have Information About CYTOXIN, (CYCLOPHOSPHAMIDE)?
Ed's oncologist has said this would be the next treatment for his MM. (diagnosed 2016, had a SCT in 2017, been on Rev, Dara and pomylist, and for the past year and a half, Dara and Ninlaro). His kappa #s are creeping up, but Oncologist doesn't want to change just yet. We asked about Elranatamab and Talquetamab and he said they were too complicated, but what he told us about Cytoxin seemed more complicated than what we have read about either of the two newly approved ones. Just looking for… read more
Cytoxan
doctor will change my treatment to : cyclophospgamide(cytoxan) pomalyst , darzalex and dexamethasone . any of you took cytoxan and pomalyst? those are new for me,is there any side effects?thanks
I Live In The Atlanta Area. Wondering If Anyone Has Had A Stem Cell Transplant At Emory In The Past Few Years?
I am scheduled for Mid July. Need more information from someone that has experienced it.
That would be great!!! I will be out of town for a couple of weeks. I hope we can meet up when I get back.
So Four Years In And It Seems I Now Need To Change My Drugs Away From Revlimid. What Are My Options?
Stem Cell Harvesting Involving Chemotherapy Before SCT?
I am approved for a SCT. Today I went to get my decision from the commission. They want to collect cells before the holidays and freeze them, and the transplant itself to be after the New Year. It's strange to me though that they told me they wanted to administer chemotherapy during the stem cell collection, I quote what the doc said: "Collection cells/chemotherapy/cell collection again"
Isn't the chemotherapy done immediately before the transplant itself? Have any of you had this type of cell… read more
I had a series of shots to open up the bones to help the stem cells out. The cells were harvested In two days, I needed 3 million, I had extra they banked. I went home for the weekend. I had another… read more
SCT Harvesting
Im getting my stem cells harvested next month. Does someone have to be with me or can they sit with me while it’s being done? Thanks
Unless they give you high dose Cytoxan before harvesting. My center did. Never doing that again 🤨
Has Anyone Else Had A Damaged Chromosome After SCT, That Was Not Damaged Before SCT And Was Also Normal At Time Of Diagnosis?
Bone Marrow Biopsy showed Chromosome 20Q detection. My husband has been told that it appears the heavy chemo given at time of SCT most likely caused the damaged chromosome. Another BMB will be done in 6 months for comparison and to make sure a secondary cancer is not happening
What Causes Nauseas With Having MM?
Yes !
How Is Your Dexamethasone Prescribed?
I was given it, take 20mg an hour before with premeds on Dara injection days. When I needed a refill it says 20mg 1st and 2nd day at beginning of cycle. First the NP said it was right- then I asked doctor, he said let’s do what you’ve always done- don’t take on second day.
When I started my trial I was on 40 mg of Dex. I started having vision issues and they dropped it to 20 mg. I did not have an uptick in energy and or a crash. I have had fatigue the whole time frame.
DARZALEX FASPRO, POMALYST, And Dexamethsone
I am starting on darzalex Casper, pomalyst and dexamethsone in a week and wonder if you tolerated it well and if you had any side affects
Keep us posted Jan fingers crossed 🤞 prayers for good results 🙏
