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Does Any One Have Information About CYTOXIN, (CYCLOPHOSPHAMIDE)?
Ed's oncologist has said this would be the next treatment for his MM. (diagnosed 2016, had a SCT in 2017, been on Rev, Dara and pomylist, and for the past year and a half, Dara and Ninlaro). His kappa #s are creeping up, but Oncologist doesn't want to change just yet. We asked about Elranatamab and Talquetamab and he said they were too complicated, but what he told us about Cytoxin seemed more complicated than what we have read about either of the two newly approved ones. Just looking for… read more
Cytoxan
doctor will change my treatment to : cyclophospgamide(cytoxan) pomalyst , darzalex and dexamethasone . any of you took cytoxan and pomalyst? those are new for me,is there any side effects?thanks
Has Anyone Had Their Kappa Light Chain Go From Almost Nothing To The 4000s? If So, What Was The Treatment?
A change of medication sounds in order!
Hi, Anyone Else Dealing With Extra-medullary Myeloma (EMM)?
My version of multiple myeloma is rare apparently. I have extra-medullary myeloma, and it has manifested itself in two liver lesions, and now a soft-tissue plasmacytoma on my right gluteus medius muscle. The liver lesions resolved under treatment of Daratumamab-Pomalidomide-Dexamethasone, over 18 months. In April and July 2024, MRI results showed a growing plasmacytoma on my muscle, which has been biopsied and is definitely MM, with the same markers as before, CD138 and CD56. Biopsy results… read more
Keith
It sounds like you are knowledgeable about the treatments. Our bodies are like cars, they replace parts that don’t works or if that doesn’t work, replace another one, then fix the dents.… read more
I Live In The Atlanta Area. Wondering If Anyone Has Had A Stem Cell Transplant At Emory In The Past Few Years?
I am scheduled for Mid July. Need more information from someone that has experienced it.
That would be great!!! I will be out of town for a couple of weeks. I hope we can meet up when I get back.
I've Had One Stem Cell Collection, Did Not Collect Enough And Will Need Another. Anyone Had This Experience? Any Advice?
Does Any One Feel Nauseous On Days ?
So Four Years In And It Seems I Now Need To Change My Drugs Away From Revlimid. What Are My Options?
Stem Cell Harvesting Involving Chemotherapy Before SCT?
I am approved for a SCT. Today I went to get my decision from the commission. They want to collect cells before the holidays and freeze them, and the transplant itself to be after the New Year. It's strange to me though that they told me they wanted to administer chemotherapy during the stem cell collection, I quote what the doc said: "Collection cells/chemotherapy/cell collection again"
Isn't the chemotherapy done immediately before the transplant itself? Have any of you had this type of cell… read more
I had a series of shots to open up the bones to help the stem cells out. The cells were harvested In two days, I needed 3 million, I had extra they banked. I went home for the weekend. I had another… read more
SCT Harvesting
Im getting my stem cells harvested next month. Does someone have to be with me or can they sit with me while it’s being done? Thanks
Unless they give you high dose Cytoxan before harvesting. My center did. Never doing that again 🤨
