For those that harvested their stem cells and had a 4-6 week break from chemo during the process, did your light chains and M-spike numbers remained the same during this break, or continue to go down or went up slightly before chemo treatments started up again?
My light chains stayed in normal level.
Does anyone have been on CTD treatment
Thank you for answers,when my dad finished treatments I can ask a dr to change thalidomid
I have taken Velcade and Cytoxin in past.What is other's experiences with these drugs,good or bad.Thanks!!!!
Rx7race, I am praying your oncologist can come up with Something that agrees with you. Something that doesn’t cause a rash. I am sure your oncologist has a few more options up his/her sleeve
Sending… read more
Hello everyone: My husband's oncologist told him "he may have chemo for a long time, until there is "some sort of remission." He has it 3 times per month...his 8th month now....How possible is this? Doesn't that stop working eventually? My husband has MM with light chain kappa and kidney failure. Not on dialysis but with a high creatinine level (1.8) and GFR at 41. The doctors he sees are all vague... They say they have "different levels of treatments" if the first one does not work. And happy… read more
I hope not 🥴
I was diagnosed in June of 2020 and had a stem cell transplant in January of 2021. I have been on Revlimid and Velcade the entire time. My latest lab tests show a definite decline. I am wondering if there is another medication that people have changed to after these two quit being beneficial.
You are most welcome. I hear you on the labs. I am so thankful my most recent ones are still okay💕🙏
I am recently diagnosed with amlyodosis and multiple Myloma. I have no idea the prognosis. I am treated with Dexamethasome,Cytoxan,Velcade,and Darzalex Faspro every Thursday, I have had 4 treatments
Has anyone had an appointment with Dr. William Matsui (UT Austin) or Dr. Robert Orlowski (MD Anderson Houston)? My PCP sent a referral to Dr. Matsui and I’ve been told they’re not accepting new patients. Frustrating since I live about 22 miles from Dr. Matsui’s office (Bastrop, Tx) and 2 1/2 hours from Dr. Orlowski. How does one go about finding a Doctor Who works in cooperation with the MD Anderson doctors?
I’m in a similar situation now. I’m back at our home in Tulsa after SCT. Dr Patel partners with my MDA certified oncologist here that she connected me with last spring. She is the boss! I’m on… read more