Quick Links
Resources
About MyMyelomaTeam
Powered By
Mark R thanks for sharing the link.
A little fatigued & itchy from Velcade injection. Has anyone found a cream that helps with “thin/fragile” skin on forearms & hands. I continue to bruise & bleed easily.
I wonder if moisturizers would help. I'm always getting cuts and puncture wounds on my arms and hands. Plus I take Eliquis for blood clots; the wounds bleed for a while before they stop. Nothing… read more
Hi All!
I want to know if anyone has high blood sugars on dexamethasone and if so what are you taking for it? Are you taking insulin for it what kind or are you just monitoring what you eat? My sugar went up on my first treatment from 161-340. So I don't think that is healthy.
Thank you
I currently have a cracked rib...we don't know how it happened. The rib is not hurting...just showed up on a shoulder and thoracic spine study because I have chronic, unexplained shoulder pain.
I have 2 hemangiomas on my thoracic spine and I am having pain and BURNING in my thoracic spine . I've been told that they are not of a concerning nature...BUT anything growing on my spine concerns me!
Good Morning, BevD! Thank you so much for sharing. I will be asking the doctors at Duke for additional testing based on all of the comments you guys are sharing.
My teammates here are awesome… read more
Has anyone found a way to loose weight or exercise during this period of MM? I gained 25 lbs from massive doses of gabapentin and it is right in the stomach area. I am really struggling with some basic exercises and I become too short of breath to continue. Any tips or thoughts? Thank you
Thank you Donna. I think my appointment is Monday. (I’ll double check that since this week we had an appointment mixed up).
Anyway, next week i’ll find out if things stay the same or if it’s time… read more
Has anyone ever received results of an “asymmetrical peak in the gamma region” on SPEP, but told “No Monoclonal protein found” on Immunofixation (IFE)?
I have received testing at 2 highly recognized MM facilities. One says I do not have MGUS due to no monocolonal protein found, yet I have elevated Kappa Free light chain & an elevated Free light chain ratio. Docs believe it is autoimmune related, yet my rheumatologist and kidney doctor do not agree.
The other facility, says I have MGUS. Light… read more
Okay. I was just checking. I have a heart condition I think was caused by high corticosteroids. It also affected my adrenals. I do not produce any DHEA anymore. DHEA is the fountain of youth.
Paula
My SEP has shown this for last 3 months. I know it shows that patient is prone to infections but other than that very little. Dr. does not seem concerned. Does anyone have experience with and /or more knowledge of this?
Thank you, Peter, for this info re myelomacentral.