In the last few days, someone spoke about their tummy growing round and protruding. They had a name for it. I don't know who spoke about it. We have been blaming my husband's 'pregnant belly' on Dara, but if this is actually something else, we'd like to know. It bothers him quite a bit. First, he just doesn't like it! He has trouble bending over...pushes on his lungs, making it hard to breath. His clothes don't fit, I'm not a skinny girl , so I get it, but the breathing is worrisome.
Steroids! Ask to drop the dose. See an endocrinologist.
I am having recurrent Post Vitreous Detached of the Retina. I get flashing in my eyes. The Retina Specialist thinks it is from my past high corticosteroid use. I really don’t want to go blind.
Thank you💕 I’m not sure what’s going on with my body. I’ve had terrible constipation since 2019. For over 2 weeks I have had diarrhea. Very inconvenient.
If so, for how long and much and how frequently?
If something additional - how little of what?
I just came back from a dental appointment where there are two cracked teeth - a bicuspid and the right rear molar which is split. Due to taking Zometa, this medication has affected my jaw. In addition to my dentist, I need to confer with my oncologist, an oral surgeon and an endodontist.
A little fatigued & itchy from Velcade injection. Has anyone found a cream that helps with “thin/fragile” skin on forearms & hands. I continue to bruise & bleed easily.
Does anyone know the incidence of retinal tears, holes and detachments w myeloma patients and whether it’s the para protein or lenalidomide that increases one’s risk?
We have asked Dana-Farber oncologist And he really didn’t know nor did the Mass eye ear retina specialist
However, I have found many articles from retina journals and others that describe a relationship between each
I am wondering what experience any of you have had
I want to know if anyone has high blood sugars on dexamethasone and if so what are you taking for it? Are you taking insulin for it what kind or are you just monitoring what you eat? My sugar went up on my first treatment from 161-340. So I don't think that is healthy.
I have been in complete response (remission) for a year; I take a maintenance dose of Revlimid 10 mg for 21 days and 7 days off
Question: I have complete loss of appetite on Revlimid. This has intensified over the year. I’m underweight. Food turns my stomach. Nothing tastes good. I always feel as if i’ve just eaten a large meal with cheesecake dessert.
Haha. Yes. I can eat all the dessert I want - who ever thought I wouldn’t relish the idea?
Question 2: Do others in this group who have… read more
Thank you. I will!