In the last few days, someone spoke about their tummy growing round and protruding. They had a name for it. I don't know who spoke about it. We have been blaming my husband's 'pregnant belly' on Dara, but if this is actually something else, we'd like to know. It bothers him quite a bit. First, he just doesn't like it! He has trouble bending over...pushes on his lungs, making it hard to breath. His clothes don't fit, I'm not a skinny girl , so I get it, but the breathing is worrisome.
Steroids! Ask to drop the dose. See an endocrinologist.
I have no idea how to control sweating but I have been sweating a lot since I started treatment. My guess is that it could be due to nerve damage because I have a lot of peripheral neuropathy.
I currently have redness on my face that looks like windburn or sunburn. Has anybody experienced super dry flaky skin post SCT? Any recommendations for skin care products? Thank you!
I just started Dapsone, so here’s hoping!
I am having recurrent Post Vitreous Detached of the Retina. I get flashing in my eyes. The Retina Specialist thinks it is from my past high corticosteroid use. I really don’t want to go blind.
The diarria was very bad for me, Dr.Nuka at emory put me on 4 tablets a day (625mg) of colesevelam hydrochoride also .called whocol. Much improved. Maybe ask about it
I would ask a podiatrist as there are various types of neuropathy and treatments may be different.
So glad ur getting relief. He never had any. Treated by dermatologist with heat treatments 3X week for months n Dupixent shots every 2 weeks for 6 months. So sad watching him suffer
They would be… read more
Husband has mm x 8 yrs. About 4 months ago, his abdomen has been expanding. He looks like he’s 9mo pregnant now. X-rays show gallstones and a sluggish bowel. He has pain. the gastroenterologist told me its from the pain meds. Now, he has a long standing heart condition. The extra wt in the front makes it harder for the heart. Right before, days, my sister died,she had the extended abd too .As soon as she died the abdomen returned to normal. HELP….our NP knows about it, and that I… read more
Me too. TMI🥴
I’m having hot and cold flashes it’s awful I wake up at 2:00 AM eat a popsicle turn the ac’s down to 70 plus turn on ceiling fan
I also keep aloe Vera juice in refrigerator and soak a paper towel… read more
Hi, Mandy .
Am on darzalex only once every month for the past seven months. Now its going to be once every two months.
And it's working well with me.
Having blood thinner too.
If so, for how long and much and how frequently?
If something additional - how little of what?
Thanks
You’re funny