Quick Links
Resources
About MyMyelomaTeam
Powered By
I want to get a massage for body aches but read somewhere if you have cancer, they tell you not to get massages. Has anyone read or heard of this. I am in stage 4 terminal, I do not qualify for any treatment other than Revlimid, dexamethasone, acyclovir, darzalex, Aranesp for my anemia due to all my other medical conditions. No radiation. no cell therapy, etc.I have holes in my spine, my neack and a hole in my skull.
Awe thinking of you. I have heard massages aren't a good idea for us with mm. I hope you have a really great Year!
Any cautions or concerns.
In my case for my left hip - very tight muscles and quite a bit of pain - Thanks.
I get acupuncture on my back and it helps for awhile and have been since getting MM because he won’t manipulate me. I am going too see about getting an appointment too have acupuncture on my left hip… read more
Is there an alternative drug to Velcade that doesn't cause neuropathy? I have been on it for only four months and starting to get tingling in hands and feet. Is this reversible? Has anyone experienced this and when did you get off the drug?
CVS or Walgreens carrys Topricin
Does anyone know a less expensive alternative? It is to prevent pneumonia in patients undergoing myeloma treatment.
Thank!
Dapsone
With 6 new Car-T Cell Therapy's now approved by the FDA since 2017, how do we know which one works best?
Hey Ricky, there are only 2 FDA approved CAR T available now for myeloma. More in the pipeline. They are only doing CAR T for relapsed and refractory myeloma after several treatments have failed. The… read more
Why go through all the agony of chemo and radiation if the eventual outcome is you aren't around to enjoy life? The idea that there is no other alternative is ludicrous
Your body rebelled against what it saw as too much to bear, whether from stress, pathogens, unhappiness, poor eating habits, no exercise- whatever. If you screwed up, FIX IT!! Don't get into the 'poor me' frame of mind and think this is it. It isn't. Change everything that isn't working for you. Your body will answer the call… read more
Sara4 - WebMd says chlorine dioxide is unsafe except in extremely small amounts to disinfect water.
What amount of chlorine dioxide do you consume, in what form and how often?
Fenbendazole seems to… read more
Has anyone had bone problems with their jaw after taking Xgeva? If so how soon did it happen? I am only on my third treatment and have a tingling sensation in my upper left jaw. Is there an alternative drug that doesn't carry the same risks?
Bob, I'm sorry this happened. I hope you are healing well💗
Husband's most recent cytology report from his bone marrow biopsy said "Normal Male Karyotype, no clonal abnormalities detected." A FISH analysis was not done on this biopsy, probably because there were no abnormalities, but the original Fish analysis on the biopsy done at diagnosis, showed multiple chromosome deletions and alterations, leading to a "high risk" prognosis. This is also puzzling, since we were told that "high risk" suggests that the usual therapies do not work and multiple… read more
AMEN! EVERYDAY IS A BLESSING!
My dermatologist told me to wash, using my hands instead of a cloth. I didn’t ask him why🤷🏽♀️. But I’ve noticed broken skin under my breast (where I had been using a washcloth)😳
Yes, our skin gets thinner as we get older, but steriods cause our skin to get thinner than it would have otherwise.
I had my SCT March 2022. I am only 53 but this sucks!