Connect with others who understand.

sign up log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Complementary and alternative therapies"

reset

Does Anyone Experience Jaw Pain, Also Does Anyone Know If Acupuncture Helps With Body Aches And Pains

Does Anyone Experience Jaw Pain, Also Does Anyone Know If Acupuncture Helps With Body Aches And Pains

I want to get a massage for body aches but read somewhere if you have cancer, they tell you not to get massages. Has anyone read or heard of this. I am in stage 4 terminal, I do not qualify for any treatment other than Revlimid, dexamethasone, acyclovir, darzalex, Aranesp for my anemia due to all my other medical conditions. No radiation. no cell therapy, etc.I have holes in my spine, my neack and a hole in my skull.

A MyMyelomaTeam Member

Awe thinking of you. I have heard massages aren't a good idea for us with mm. I hope you have a really great Year!

Has Anyone Used Dry Needling As Part Of PT ?

Has Anyone Used Dry Needling As Part Of PT ?

Any cautions or concerns.
In my case for my left hip - very tight muscles and quite a bit of pain - Thanks.

A MyMyelomaTeam Member

I get acupuncture on my back and it helps for awhile and have been since getting MM because he won’t manipulate me. I am going too see about getting an appointment too have acupuncture on my left hip… read more

Is There An Alternative Drug To Velcade?

Is There An Alternative Drug To Velcade?

Is there an alternative drug to Velcade that doesn't cause neuropathy? I have been on it for only four months and starting to get tingling in hands and feet. Is this reversible? Has anyone experienced this and when did you get off the drug?

A MyMyelomaTeam Member

CVS or Walgreens carrys Topricin

My Oncologist Has Prescribed Atovaquone

My Oncologist Has Prescribed Atovaquone

Does anyone know a less expensive alternative? It is to prevent pneumonia in patients undergoing myeloma treatment.
Thank!

A MyMyelomaTeam Member

Dapsone

Car-T Cell Therapy

Car-T Cell Therapy

With 6 new Car-T Cell Therapy's now approved by the FDA since 2017, how do we know which one works best?

A MyMyelomaTeam Member

Hey Ricky, there are only 2 FDA approved CAR T available now for myeloma. More in the pipeline. They are only doing CAR T for relapsed and refractory myeloma after several treatments have failed. The… read more

I'm Confused About "treatment" Plans That Admittedly Don't Work In The End. W

I'm Confused About "treatment" Plans That Admittedly Don't Work In The End. W

Why go through all the agony of chemo and radiation if the eventual outcome is you aren't around to enjoy life? The idea that there is no other alternative is ludicrous
Your body rebelled against what it saw as too much to bear, whether from stress, pathogens, unhappiness, poor eating habits, no exercise- whatever. If you screwed up, FIX IT!! Don't get into the 'poor me' frame of mind and think this is it. It isn't. Change everything that isn't working for you. Your body will answer the call… read more

A MyMyelomaTeam Member

Sara4 - WebMd says chlorine dioxide is unsafe except in extremely small amounts to disinfect water.

What amount of chlorine dioxide do you consume, in what form and how often?

Fenbendazole seems to… read more

Xgevia And Bone Problems In Jaw.

Xgevia And Bone Problems In Jaw.

Has anyone had bone problems with their jaw after taking Xgeva? If so how soon did it happen? I am only on my third treatment and have a tingling sensation in my upper left jaw. Is there an alternative drug that doesn't carry the same risks?

A MyMyelomaTeam Member

Bob, I'm sorry this happened. I hope you are healing well💗

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Do FISH Results Showing Chromosome Deletions And Alterations Ever Change Back To Normal As A Result Of Chemo Treatments?

Husband's most recent cytology report from his bone marrow biopsy said "Normal Male Karyotype, no clonal abnormalities detected." A FISH analysis was not done on this biopsy, probably because there were no abnormalities, but the original Fish analysis on the biopsy done at diagnosis, showed multiple chromosome deletions and alterations, leading to a "high risk" prognosis. This is also puzzling, since we were told that "high risk" suggests that the usual therapies do not work and multiple… read more

A MyMyelomaTeam Member

AMEN! EVERYDAY IS A BLESSING!

Has Anyone Noticed Their Skin Becoming Thinner, Since Being Diagnosed?

Has Anyone Noticed Their Skin Becoming Thinner, Since Being Diagnosed?

My dermatologist told me to wash, using my hands instead of a cloth. I didn’t ask him why🤷🏽‍♀️. But I’ve noticed broken skin under my breast (where I had been using a washcloth)😳

A MyMyelomaTeam Member

Yes, our skin gets thinner as we get older, but steriods cause our skin to get thinner than it would have otherwise.