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Top 10 Search Results for "Clinical trials"

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Clinical Trials

Clinical Trials

I,m very interested in clinical trials as Car-T cell immunotherapy for MM patients and also for Dendritic cell Therapy

A MyMyelomaTeam Member said:

Call the cancer society yall

posted over 2 years ago

How Long Is The Progression From Smoldering?

How Long Is The Progression From Smoldering?

Have you progressed from smoldering to active myeloma? How long did it take?

A MyMyelomaTeam Member said:

@A MyMyelomaTeam Member that’s awesome. I hope I’m smoldering until they find a cure :)

posted 4 months ago

Doctors

Doctors

I am seeing that quite a few people on here are recommending a myeloma specialist. The doctor my PCP recommended I see is a hematologist/oncologist with her profile indicating treating Multiple Myeloma and othe r blood dyscrqasias and blood cancers. She is form the Kellogg Cancer Center in Evanston. My question is should i be looking for a person who only specializes in Myeloma.? my moms oncologist/hematologist treated a variety of other cancers.

A MyMyelomaTeam Member said:

I am seeing a myeloma specialist (two actually) through Illinois Cancer Specialists. One in Elgin and one in Niles.

posted 5 months ago

Clinical Trials

Clinical Trials

I am looking for trials involving Tcell treatments in canada. Does anyone have any contact info for this? I've been through one course of chemo and stem cell recently and currently in remission. Living on the west coast of BC. thanks

A MyMyelomaTeam Member said:

Can you tell us about the T cell treatment. It's the newest I think

posted almost 2 years ago

Has Anyone Been Classified As High Risk And Had 2 SCT And Relapsed?

Has Anyone Been Classified As High Risk And Had 2 SCT And Relapsed?

A MyMyelomaTeam Member said:

Yes, I have. Had three SCT since 2005. 17p deletion. Will be starting Kyprolis but waiting for celta-cel CAR T to get FDA approved on November 29. The latest trial report states 80% stringent… read more

posted about 2 months ago

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

Can People With Multiple Myeloma Taking Maintenance Therapy Get The Covid 19 Vaccine?

Hi
I am on Daralex and dexamethasone for maintenance therapy. I ask my doctor about getting the Covid 19 vaccine and was told it may not be as effective because of the maintenance therapy. They did not say I could not get the vaccine, but I should check to see what the CDC guidelines were.

Thanks
Wordpass22

A MyMyelomaTeam Member said:

Me too, Wordpass!! I had a slight reaction of MORE fatigue and some chills. It was gone by the next day. Are we protected? Well, that's the question isn't it?

posted about 1 month ago

Not Officially Diagnosed...but Scared

Not Officially Diagnosed...but Scared

I was sent to a rheumatologist because I was having a petechiae/purpura rash since march of 2020 with bone pain and low grade fever. Also have severe hip and back pain, neuropathy, terrible headaches, recurrent uti's, fatigue and weakness. My routine labs at my PCP kept coming back relatively normal. My WBC is always elevated. The labs the rheumatologist ran showed elevated proteins, elevated IgA, hypoalbunemia, elevated CRP, elevated kappa light chain and kappa/lambda ratio but no m… read more

A MyMyelomaTeam Member said:

A cause to celebrate, Milissa......

posted 9 months ago

Anemia

Anemia

Hi, my plasma cell numbers were high but not high enough to be diagnosed with multiple myeloma. Instead it was deemed smoldering, despite having some anemia. Now my anemia number is down to 9.6 and my red blood cell count is low too. It sounds like I am getting worse but no one seems to be panicking. Anyone understand anemia? Will iron help? More red meat?

A MyMyelomaTeam Member said:

I’m Anemic. Any suggestions on how to build my blood back to normal? My dr has me taking 3 Ferrosol pills a day, however, I was still Anemic, when I went to my last appointment.

posted 5 months ago