I’ve been on Darzalex/Revlimid/Dexamethasone for the last year and a half. I just received the latest Myeloma labs, and my M-Spike is down to 0.11. Serum immunoelectrophoresis identifies it as type IgG.kappa. All past M-Spikes were IgG.Lambda. I wonder if the IgG.kappa M-Spike is from the Darzalex, (a Kapa monoclonal protein) and that the IgG.Lambda M-Spike may be gone. Anybody experience this?
Im fighting the fatigue that is almost ever present. Wondering if anyone is taking vitamins to combat the fatigue and do they work? B12, etc
Examples:! Marks on legs. rashes, red hands, red spots, bad skin. . .
I am in my 5th cycle of VRD and am working full time. I am struggling with the fatigue and brain fogginess, difficulty concentrating… I just don’t feel as mentally sharp as I used to. Do others experience this and if so any tips?
I am going on medicare in December and I have been paying $10.00 for my Revlimid because I have medical coverage through my employer . On Medicare its$1700 per month( give or take). I do not qualify for assistance with Healthwell . I make just over the amount for assistance . With part D ,I have to spend over $6000 in order to exit the medical , then I was told it will be $894 per month. Does anyone know how to get a lower cost?or how to navigate a better plan with medicare?
We question whether that is necessary, since she is still weak and dealing with side effects from past treatments, including neuropathy in her feet from the chemo. Blood test is scheduled for mid-Aug., so we are eager to know the options available for my wife if she is still in remission at that time and also any options if the MM is detected in Aug. We are told that her MM is not aggressive.
Thank you very much,
Roy and Sandy
I was writing down what Marcia Holman is taking beginning with Centrum Silver Multivitamin, 1000 mg vitamin c, but d, magnesium for leg cramps, Alpha Lipoic Acid 600 mg for peripheral neuropathy, L -Lisine for immune health, but then I somehow lost the rest when writing it down. Could anyone help with what she wrote. I’m also very interested to know what the other team members take & is working specifically for peripheral neuropathy in my toes & for immune health. I apologize for not posting… read more