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I was on Carfilziomib in 2017. It did not work on my myeloma. It did make my blood pressure go up a little.
My step father's result has shown stage 1 Multiple Myeloma
I am approved for a SCT. Today I went to get my decision from the commission. They want to collect cells before the holidays and freeze them, and the transplant itself to be after the New Year. It's strange to me though that they told me they wanted to administer chemotherapy during the stem cell collection, I quote what the doc said: "Collection cells/chemotherapy/cell collection again"
Isn't the chemotherapy done immediately before the transplant itself? Have any of you had this type of cell… read more
I had a series of shots to open up the bones to help the stem cells out. The cells were harvested In two days, I needed 3 million, I had extra they banked. I went home for the weekend. I had another… read more
Depending on what you want, stem cell harvesting after one dose of chemo, then re-administering your own cells can work for a long time. My high school friend had 80% of her bone marrow affected by… read more
We don't know Sarat. It depends on how well you respond to treatment. Usually about three months. Some people get a complete response with one round of treatment, others need more rounds. It took me… read more
I would ask a podiatrist as there are various types of neuropathy and treatments may be different.
I have been on D-VRD for 14 weeks so far for induction therapy (diagnosed Dec 2023). I have been responding to the treatment very well and numbers continue to improve. Scheduled for SCT next month. I… read more
Thank you Paula. I appreciate your help.😊
I’ve been on Darzalex/Revlimid/Dexamethasone for the last year and a half. I just received the latest Myeloma labs, and my M-Spike is down to 0.11. Serum immunoelectrophoresis identifies it as type IgG.kappa. All past M-Spikes were IgG.Lambda. I wonder if the IgG.kappa M-Spike is from the Darzalex, (a Kapa monoclonal protein) and that the IgG.Lambda M-Spike may be gone. Anybody experience this?
The Daratumab specific ife was not available at labs at the beginning of the year. I hope they have it now. I had an m spike on the kappa region too. I didn't worry since I am IgG Lambda😉
Suppose everyone wants to live a long life and not be involved with myeloma and chemo. I get that. However, considering the alternative the immunology chemo is not that bad for at least 85% of the… read more