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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Chemotherapy"

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Revlimid Costs

Revlimid Costs

I am going on medicare in December and I have been paying $10.00 for my Revlimid because I have medical coverage through my employer . On Medicare its$1700 per month( give or take). I do not qualify for assistance with Healthwell . I make just over the amount for assistance . With part D ,I have to spend over $6000 in order to exit the medical , then I was told it will be $894 per month. Does anyone know how to get a lower cost?or how to navigate a better plan with medicare?

A MyMyelomaTeam Member said:

Wow, that a lot to me. I'm on disability, I have Medicare. Was diagnosed in 2017. I've had chemotherapy. For this year my deductible is payed and my meds is covered. No pit of pocket. I just pay 35… read more

posted 28 days ago

Is Treatment For MM Needed When In Remission?

Is Treatment For MM Needed When In Remission?

We question whether that is necessary, since she is still weak and dealing with side effects from past treatments, including neuropathy in her feet from the chemo. Blood test is scheduled for mid-Aug., so we are eager to know the options available for my wife if she is still in remission at that time and also any options if the MM is detected in Aug. We are told that her MM is not aggressive.
Thank you very much,
Roy and Sandy

A MyMyelomaTeam Member said:

Thank you for taking time to respond. May God bless you and keep you in remission for a GOOD while. My wife's MM is not aggressive also, so Lord willing, she will be off treatment, once she reaches… read more

posted about 2 months ago

Those Of You That Are On Revlimid...do You Golf....my Husband Has Not Golfed Since Being On Revlimid.

Those Of You That Are On Revlimid...do You Golf....my Husband Has Not Golfed Since Being On Revlimid.

tried to swing a golf club gently last week....twice.....and the next day his neck and back were tight and stiff for almost a week, we're assuming golf is out for him....wondered if anyone else has tight feeling muscles, tendons....he stretches but maybe not enough....wondered if taking fish oil would help.....maybe not much one can do....he's on 5 mg revlimid every day (maintenance) - thanks for any info.....

A MyMyelomaTeam Member said:

Try acupuncture

posted 29 days ago

Revlimid Itching

Revlimid Itching

My husband started revlimid this week for maintenance. He had stem cell transplant in January 2020 and has been doing well. He is having itching mostly on his scalp. Has anyone else had this and how long did it last? Thank you.

A MyMyelomaTeam Member said:

Thanks everyone for all of the input. He is doing better, is on a cream as needed and Claritin as needed. You guys are great!

posted 7 months ago

Hair Loss

Hair Loss

Did you lose your hair during treatment?

A MyMyelomaTeam Member said:

I lost hair from mm,my chemotherapy stopped my hair loss,they were two treatments ,one caused hair loss and Velcade didn't,my onoglist chose Velcade because it would work without hair loss

posted 8 months ago

Financial-Housing Resources For Woman And Children

Financial-Housing Resources For Woman And Children

Greetings,
Does anyone know of any resources that can help me with housing and or funds for housing? After this week me and my children will be homeless and with this Covid-19 and me being in active Chemotherapy treatment scares me tremendously!!!!! Please Help!!!!
(Phone number can only be seen by MyMyelomaTeam users) is my number
My email address is: (Email address can only be seen by MyMyelomaTeam users)

A MyMyelomaTeam Member said:

So sorry for u and your childreni am blessed because i got a cancer policy 18 months before i was diagnosed,it pays me some on my meds,and pays very good for radiation

posted 8 months ago

New To The Site And In My 3rd Cycle Of My Treatment Plan. Taking Velcade, Revlimid, Dexamethasone, Omeprazole And Acyclovir

New To The Site And In My 3rd Cycle Of My Treatment Plan. Taking Velcade, Revlimid, Dexamethasone, Omeprazole And Acyclovir

Been fortunate I've had no side effects to this point. Feeling pretty good with daily exercise and trying to keep a positive attitude to help me through this journey.

Seems after reading a lot of the posts, most have taken the next step to do the transplant. I know everyone might be at different stages and treatment plans but just wondering if I can get some feedback as to why these decisions were done to move forward.

Understanding there is not a MM cure but remission is the goal and to stay… read more

A MyMyelomaTeam Member said:

I had my stem cell in March 2016. Once I got strength build back up I fe lol t better than I had in years! I see my Dr. Next month. I'm always scared. I love my kidneys...lol.. I went to E.R in June… read more

posted 9 months ago

Does Anyone Have Smoldering Myeloma?are You Doing Treatment?

Does Anyone Have Smoldering Myeloma?are You Doing Treatment?

A MyMyelomaTeam Member said:

Diagnosed with Asymptomatic Myeloma 6 months ago. 2 specialists told me that they do not believe in treating it to "prevent" it from advancing to Multiple Myeloma as all studies on the subject are… read more

posted 1 day ago

Osteonecrosis Of The Jaw

Osteonecrosis Of The Jaw

Hubby just diagnosed with ONJ. He has no pain, but dentist found exposed bone and infection in the gum. Referred to oral surgeon, but can't get in for two months. Would be interested in hearing from anyone who has experienced this. Oncologist put him on antibiotic, clindamyicin, but that has bad side effects long term, so not anxious to stay on that forever. Cause is probably the Xgeva he was on for a year, but has been off for nearly a year. Thanks for any input from all of you.

A MyMyelomaTeam Member said:

I was told to get my teeth X-rayed and checked before starting induction/chemo treatments. They took out one tooth, so now my bottom teeth are going to spread, I think. They couldn't do any other… read more

posted about 1 month ago