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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Chemotherapy"

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M-Spike

M-Spike

I’ve been on Darzalex/Revlimid/Dexamethasone for the last year and a half. I just received the latest Myeloma labs, and my M-Spike is down to 0.11. Serum immunoelectrophoresis identifies it as type IgG.kappa. All past M-Spikes were IgG.Lambda. I wonder if the IgG.kappa M-Spike is from the Darzalex, (a Kapa monoclonal protein) and that the IgG.Lambda M-Spike may be gone. Anybody experience this?

A MyMyelomaTeam Member said:

If you’re M spike is that low. That sounds good to me

posted 3 days ago

How Many Of You Had Neuropathy When You Had MGUS, And Where Did You Have It?

How Many Of You Had Neuropathy When You Had MGUS, And Where Did You Have It?

A MyMyelomaTeam Member said:

Thank you for sharing and I'm glad you no longer have to receive the Velcade. It really does help to know because one may experience it while undergoing chemo or after stopping (a side effect kind of… read more

posted 2 days ago

I'm On Revlimid, Ninlaro And Dex, With Once A Month Infusion Of Zolendronic Acid

I'm On Revlimid, Ninlaro And Dex, With Once A Month Infusion Of Zolendronic Acid

Im fighting the fatigue that is almost ever present. Wondering if anyone is taking vitamins to combat the fatigue and do they work? B12, etc

A MyMyelomaTeam Member said:

I think b12 does help. I use a sublingual tablet. My mother swore by Geritol😄👍💜

posted 3 months ago

Are There Any Noticeable Marks Or Visible Skin Conditions That Are 100% Associated With Multiple Myleoma?

Are There Any Noticeable Marks Or Visible Skin Conditions That Are 100% Associated With Multiple Myleoma?

Examples:! Marks on legs. rashes, red hands, red spots, bad skin. . .

A MyMyelomaTeam Member said:

My skin got darker. Looks like I have been sun bathing. I have always been one to look for shady places, I am not a sun worshipper.

posted 12 days ago

How Do People Deal With Fatigue That Comes With Myeloma And Treatment.

How Do People Deal With Fatigue That Comes With Myeloma And Treatment.

I am in my 5th cycle of VRD and am working full time. I am struggling with the fatigue and brain fogginess, difficulty concentrating… I just don’t feel as mentally sharp as I used to. Do others experience this and if so any tips?

A MyMyelomaTeam Member said:

God is good all the time 🙏

posted 5 months ago

Revlimid Costs

Revlimid Costs

I am going on medicare in December and I have been paying $10.00 for my Revlimid because I have medical coverage through my employer . On Medicare its$1700 per month( give or take). I do not qualify for assistance with Healthwell . I make just over the amount for assistance . With part D ,I have to spend over $6000 in order to exit the medical , then I was told it will be $894 per month. Does anyone know how to get a lower cost?or how to navigate a better plan with medicare?

A MyMyelomaTeam Member said:

Wow, that a lot to me. I'm on disability, I have Medicare. Was diagnosed in 2017. I've had chemotherapy. For this year my deductible is payed and my meds is covered. No pit of pocket. I just pay 35… read more

posted 9 months ago

Is Treatment For MM Needed When In Remission?

Is Treatment For MM Needed When In Remission?

We question whether that is necessary, since she is still weak and dealing with side effects from past treatments, including neuropathy in her feet from the chemo. Blood test is scheduled for mid-Aug., so we are eager to know the options available for my wife if she is still in remission at that time and also any options if the MM is detected in Aug. We are told that her MM is not aggressive.
Thank you very much,
Roy and Sandy

A MyMyelomaTeam Member said:

Thank you for taking time to respond. May God bless you and keep you in remission for a GOOD while. My wife's MM is not aggressive also, so Lord willing, she will be off treatment, once she reaches… read more

posted 10 months ago

What Vitamins Does Everyone Take? I Have Peripheral Neuropathy In Addition To Mm. Marcia Holman, What Do You Take?

What Vitamins Does Everyone Take? I Have Peripheral Neuropathy In Addition To Mm. Marcia Holman, What Do You Take?

I was writing down what Marcia Holman is taking beginning with Centrum Silver Multivitamin, 1000 mg vitamin c, but d, magnesium for leg cramps, Alpha Lipoic Acid 600 mg for peripheral neuropathy, L -Lisine for immune health, but then I somehow lost the rest when writing it down. Could anyone help with what she wrote. I’m also very interested to know what the other team members take & is working specifically for peripheral neuropathy in my toes & for immune health. I apologize for not posting… read more

A MyMyelomaTeam Member said:

MMaffects your kidneys and as such be sure to ask your Dr because I was only allowed certain ones as my kidneys were gone when diagnosed.
God's blessings on all of you!

posted about 1 month ago