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oh, than, never mind. I have some vision problems and not so sure if having more is worth it; other side effects too. About traveling; the more side effects the more apprehension of traveling far.
It is a monotherapy for relapsed multiple myeloma. I get the infusion once/month.
I'll find it. Calling is a good suggestion. Thanks again.
Barbara
Blenrep is a conjugate drug consisting of a monoclonal antibody and a chemo drug given as an infusion for 30 minutes every 3 weeks. It's for patients who have had 4 or more prior failed treatments.
My husband had his second infusion today.
Steve is 69 years old, & a 14 year MM survivor , & just completed his second autologous stem cell transplant 4.5 months ago.
I can't tell you. I have had MM for 10 years in April. It's great that it's autologous no rejection. Prayers for you, Please if possible keep us up-to-date if you are able.
For those that have received MM Treatment, got to Complete Remission being MRD Negative without a SCT, a few questions.
1) What treatment and for how long before being declared MRD Negative?
2) What level of Negative-
10 -5 (none per 100,000) or 10 -6 (none per million)
If 10 -6, clonoSEQ or PCS or another testing method
3) What Maintenance or No Maintenance?
4) Have you ever had a Relapse - if so, what action did you take
5) How long in Remission without a SCT
6) Diet & Supplements… read more
Ask for more medication. I’m working for commission. Others are working for Jeffrey Epstein gang.
Deb6, Please make another call into your transplant team and your Oncologist. Get the medications name and dosage. Make an appointment with your eye doctor and explain that you had a Stem Cell… read more
I'd like to know how you made the decision to stop the MM Meds.
Was it your choice or doctor recommended - any details would be great.
I'm now MRD Negative. My Doc has placed me on MM Meds holiday. Now with the Jan 2022 Report about MRD-SURE, I plan to stay in Labs Monitoring Mode with no MM Meds and only add back Revlimid, if a future Labs indicates the need. Keeping my fingers crossed.
MRD-SURE Link:
https://www.cancernetwork.com/view/mrd-adapted-...
Thanks,
Larry2
just as I think of stopping maintenance my ANC dropped to 1..1
lucky me
Just want to know how long your number stay down without SCT. Is it months or years?
Sorry to say but I can’t remember what I was thinking of - that was in July. I might have been thinking about the article- “What is Minimum Residual Disease Testing”. It covers the history and the… read more
Shipmates, 20 months and going strong. Thankful to be alive.
Reading about Pomalyst, its for a Relapsed MM
The site seems to indicate the normal is 4mg daily - 21 of 28 and 40mg Dex on days 1,8,15,21
Other possibilities are 2mg and 20mg combos of the same cycles.
Has anyone changed from Revlimid to Pomalyst if they Have Not Relapsed - if so, why?
If, so how long have you stayed on Pom + Dex.
If you've continue in your Original Remission, how long on Rev+Dex and how Little Rev+Dex, such as 5mg 14/7 + 10mg Dex, etc.
So much of this is about the Quality… read more