Larry I am sending you lots of hugs, stay strong and well.
The car-t clinical trial I am referring to is for high-risk smoldering mm at Dana Farber. First time using on pre-active stage to hopefully stop progression.
I am on the ABECMA drug
There is a new study that I am potentially eligible for involving cart T cells. I am newly diagnosed have not started treatment, at a high risk for leukemia so need to delay any stem cell transfusions for as long as possible. The study is looking for people in my category to see if doing the standard 4 rounds of rvd, stem cell harvesting then cat T cell therapy will give results similar or better then the current car T cell therapy after 4 relapses
Does anyone have any experience with cat T… read more
Oh yes, it gave him a little giggle! 🤣
I was diagnosed in Oct 2020 with IGG/Kappa myeloma after a total collapse of my T5 vertebrae and spinal cord compression leaving me unable to stand and walk for a couple of months. I am on my 4th line of treatment (including Stem Cell Transplant june 2021) and I am currently preparing for T cell collection on May 10.
Thankfully I am able to walk on my own now! My myeloma is very aggressive and I have not had a break In treatment since my diagnosis except for 3 months when I was battling PAH… read more
My husband is awaiting his CARt cells as we speak...he is scheduled to go into hospital 5 /16...so far the collection and testing has gone well...praying this therapy will give him success...he had… read more
Count on it
Absolutely miraculous news so happy for you God is Great and Greatly to be Praised!!!!
Is anyone else disillusioned about the qualifying factors leading to getting ABECMA therapy? My oncologist recommends that I get the therapy. He contacted the top doctor at Siteman Cancer ctr here in st louis, missouri. He was sent all my records and it was determined that my multiple myeloma is being at a stalemate (kept from getting worse or better) by infusions of Impliciti and pomylidimide(25 days/30). So I'm doing good according to this other doctor. I have to get much worse before I'm… read more
So true
Steve is 69 years old, & a 14 year MM survivor , & just completed his second autologous stem cell transplant 4.5 months ago.
I can't tell you. I have had MM for 10 years in April. It's great that it's autologous no rejection. Prayers for you, Please if possible keep us up-to-date if you are able.
I have been in remission over a year and have been taking monthly infusions of Darzelex but recently I ran across an article describing the side effects of Darzelex and I have many of them. I have decided to stop Darzelex in order to build my immune system.