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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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How Are You’ll Today? I Hope All Is Well !

A MyMyelomaTeam Member asked a question 💭

I am not in remission anymore and have been put on Vanclexa. This is the 3rd drug that Ihave relapsed on. The doctor suggested car-T-Cell treatment but everything I read about it,it scars me! Does any one have any positive outcome from the procedure? Do you recommend it or not? Please let me know!

A MyMyelomaTeam Member

CAR t therapy.Auti correct is insane!!!

OK I'm Starting To Learn About CAR T Treatment. It's Looking Very Exciting. Thank You Larry2 And Others For Getting Our Attention!

A MyMyelomaTeam Member asked a question 💭

I found this today, among other things... Check this out!

Is ABECMA® Right for Me? - ABECMA® (idecabtagene vicleucel)
https://www.abecma.com/is-abecma-right-for-me

Is ABECMA® Right for Me? - ABECMA® (idecabtagene vicleucel)
Is ABECMA® Right for Me? - ABECMA® (idecabtagene vicleucel)
A MyMyelomaTeam Member

CAR-T cell therapy is indeed an exciting and promising treatment for multiple myeloma. Here are some key points from the knowledge base:

- What is CAR-T Cell Therapy
- CAR-T cell therapy is a type… read more

What Is The Newest Drug For Multiple Myeloma So Far

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I had the carvykti...and I'm doing great

Hi There Can Anyone Explain The CAR T Cells Therapy? I Need To Know………

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Larry I am sending you lots of hugs, stay strong and well.

Why Is The Car-T Not Available Until After 3 Or Four Failures?

A MyMyelomaTeam Member asked a question 💭

Seems to me (non-medical dude taking first course) that administering it to those who haven’t yet suffered the seriousness ravages of the disease would make some sense. Just saying…

Bispecific T-Cell Engagers for RRMM: 6 Facts About a New Type of Treatment Read Article...
A MyMyelomaTeam Member

On April 5, 2024, the FDA approved the use of two CAR T cell therapies for adults with relapsed or refractory multiple myeloma earlier in the disease's course
Carvykti (cilta-cel): Can be used after… read more

If One Is Having CAR-T Cell Therapy, Does One Need To Be In A Clinical Trial?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

The car-t clinical trial I am referring to is for high-risk smoldering mm at Dana Farber. First time using on pre-active stage to hopefully stop progression.

Looking For Feedback From Anyone That Has Done CarT Therapy?

A MyMyelomaTeam Member asked a question 💭

There is a new study that I am potentially eligible for involving cart T cells. I am newly diagnosed have not started treatment, at a high risk for leukemia so need to delay any stem cell transfusions for as long as possible. The study is looking for people in my category to see if doing the standard 4 rounds of rvd, stem cell harvesting then cat T cell therapy will give results similar or better then the current car T cell therapy after 4 relapses
Does anyone have any experience with cat T… read more

A MyMyelomaTeam Member

Oh yes, it gave him a little giggle! 🤣

Have Any Of You Had Or Will Be Having CAR T Cell Therapy?

A MyMyelomaTeam Member asked a question 💭

I was diagnosed in Oct 2020 with IGG/Kappa myeloma after a total collapse of my T5 vertebrae and spinal cord compression leaving me unable to stand and walk for a couple of months. I am on my 4th line of treatment (including Stem Cell Transplant june 2021) and I am currently preparing for T cell collection on May 10.

Thankfully I am able to walk on my own now! My myeloma is very aggressive and I have not had a break In treatment since my diagnosis except for 3 months when I was battling PAH… read more

A MyMyelomaTeam Member

My husband is awaiting his CARt cells as we speak...he is scheduled to go into hospital 5 /16...so far the collection and testing has gone well...praying this therapy will give him success...he had… read more

Has Anyone Been Treated With Car-t Cell Therapy? I Am Considering Clinical Trial.

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Count on it

Is Multiple Myeloma Curable?

A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Absolutely miraculous news so happy for you God is Great and Greatly to be Praised!!!!