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Top 10 Search Results for "Abecma"

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What Is The Newest Drug For Multiple Myeloma So Far
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

I am on the ABECMA drug

Have Any Of You Had Or Will Be Having CAR T Cell Therapy?
A MyMyelomaTeam Member asked a question 💭

I was diagnosed in Oct 2020 with IGG/Kappa myeloma after a total collapse of my T5 vertebrae and spinal cord compression leaving me unable to stand and walk for a couple of months. I am on my 4th line of treatment (including Stem Cell Transplant june 2021) and I am currently preparing for T cell collection on May 10.

Thankfully I am able to walk on my own now! My myeloma is very aggressive and I have not had a break In treatment since my diagnosis except for 3 months when I was battling PAH… read more

A MyMyelomaTeam Member

My husband is awaiting his CARt cells as we speak...he is scheduled to go into hospital 5 /16...so far the collection and testing has gone well...praying this therapy will give him success...he had… read more

ABECMA
A MyMyelomaTeam Member asked a question 💭

Is anyone else disillusioned about the qualifying factors leading to getting ABECMA therapy? My oncologist recommends that I get the therapy. He contacted the top doctor at Siteman Cancer ctr here in st louis, missouri. He was sent all my records and it was determined that my multiple myeloma is being at a stalemate (kept from getting worse or better) by infusions of Impliciti and pomylidimide(25 days/30). So I'm doing good according to this other doctor. I have to get much worse before I'm… read more

A MyMyelomaTeam Member

So true

Is Multiple Myeloma Curable?
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Greetings from Alaska i did not get a complete response and I’m on treatment but I’m doing very well and I am grateful.

How Many Of You Are In Remission From Multiple Myloma . Are You Still Taking A Monthly Infusion? What Drug? If You Stopped How Long Ago?
A MyMyelomaTeam Member asked a question 💭

I have been in remission over a year and have been taking monthly infusions of Darzelex but recently I ran across an article describing the side effects of Darzelex and I have many of them. I have decided to stop Darzelex in order to build my immune system.

A MyMyelomaTeam Member

I had my SCT in June 2022 and are now in full remission. I take Revlimid 3 weeks each month and a Dara infusion biweekly which then goes to once monthly for 2 years. It’s a clinical trial which hopes… read more

How Many Of You Have Had The Evusheld Shot/s?
A MyMyelomaTeam Member asked a question 💭

I was going to get it next week; waiting two weeks after the newest vaccine for COVID. I'm going to wait longer..... I want to see how others fare with it.
After my complaining that I was not eligible ( because I am in remission?), and now I want to wait anyway. Anyway, we'll see.
My GP said I was not eligible, but my Oncologist encourages it. I had a phone consultation with my Oncologist last week and I asked if he would approve my waiting . He said it's up to me.

A MyMyelomaTeam Member

I had Evusheld last June, but it is no longer recommended.

Antibodies
A MyMyelomaTeam Member asked a question 💭

I’m
Going to get fusion for my low antibodies. Is this common for myeloma patients. I can’t fight off infections.

A MyMyelomaTeam Member

Hello Becca21
For me it’s not a shot it’s an infusion last about 3-5 hrs it’s called an IVIG to help your immune system
I also receive another infusion for Bone Strength it’s every 6 months. I go… read more

Has Anyone Had Car-t. Please Share
A MyMyelomaTeam Member asked a question 💭
A MyMyelomaTeam Member

Posted this morning a new update

My Signicant Other Steve, Is Being Asked To Do The CarT Procedure Soon. Just Wondering How Clients Have Experienced It, & Any Regrets?
A MyMyelomaTeam Member asked a question 💭

Steve is 69 years old, & a 14 year MM survivor , & just completed his second autologous stem cell transplant 4.5 months ago.

A MyMyelomaTeam Member

Stephen we sure have beaten the odds and I am at 21 years post diagnosis. Stephen good luck with your Car-T treatment and hopefully not too many side effects.

Looking For Feedback From Anyone That Has Done CarT Therapy?
A MyMyelomaTeam Member asked a question 💭

There is a new study that I am potentially eligible for involving cart T cells. I am newly diagnosed have not started treatment, at a high risk for leukemia so need to delay any stem cell transfusions for as long as possible. The study is looking for people in my category to see if doing the standard 4 rounds of rvd, stem cell harvesting then cat T cell therapy will give results similar or better then the current car T cell therapy after 4 relapses
Does anyone have any experience with cat T… read more

A MyMyelomaTeam Member

Thank you