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A MyMyelomaTeam Member asked a question 💭
Nepal
3 days ago
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A MyMyelomaTeam Member

What about quality of life. ???
Lanolidamide is brutal .
Why isn’t there a cure??
We have cures for many other cancers .

3 days ago
MyMyelomaTeam

What does long-term survival look like for high-risk myeloma patients over 10 years?

Long-term survival for high-risk myeloma is a complex picture, but there is genuine reason for hope. Overall, about 34.6 percent of people diagnosed with myeloma are still alive 10 years after their initial diagnosis — and that number is Show Full Answer

What does long-term survival look like for high-risk myeloma patients over 10 years?

Long-term survival for high-risk myeloma is a complex picture, but there is genuine reason for hope. Overall, about 34.6 percent of people diagnosed with myeloma are still alive 10 years after their initial diagnosis — and that number is expected to improve as newer treatments continue to emerge. One important factor in long-term survival is how quickly a relapse occurs after initial treatment. Research has shown:

- People who relapsed within one year of treatment had an average survival of just under two years
- People who relapsed later had an average survival of approximately 10 years

This suggests that the longer the initial treatment holds, the better the long-term outlook tends to be. Other factors that can influence long-term survival include:

- Age — younger patients generally have better survival rates
- Genetic mutations present in the myeloma cells
- Kidney function at the time of diagnosis
- Access to treatment — early diagnosis and specialist care can make a meaningful difference
- Income and location — studies show these can unfortunately impact survival outcomes It's worth noting that current survival statistics are based on data from people diagnosed between 2013 and 2019 — they don't yet reflect the newest treatments now available. People diagnosed today may have a better outlook than the numbers currently suggest.

Talking with a hematologist-oncologist about clinical trials and newer treatment options is always a worthwhile conversation, especially for high-risk cases.

3 days ago

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