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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

Multiple myeloma is undeniably one of the most complex, unpredictable, and physically demanding cancers to manage. It is hard to handle because it does not form a single solid tumor you can easily point to. Instead, it lives inside your bone marrow, constantly affecting your blood, your bones, your immune system, and your overall energy levels.

Dealing with high-risk genetic factors like t(4;14), del(17p), monosomy 13, and TP53) means the medical team must use highly aggressive maintenance… read more

October 25
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A MyMyelomaTeam Member

Tomorrow I going to the Medical Social Worker office and to see my officer incharge of me for the first time in 40 months of cancer diagnosis 🤗
Let’s see how the going goes and definitely l will be informing all of my teammates

7 days ago
A MyMyelomaTeam Member

Modh, you have so much going on. It might help to talk to a therapist. I saw one when I was first diagnosed. I see one currently. It might or might not help, but its worth a try. I also had to take something for anxiety and depression. There is no shame in asking for help. My faith community was also a huge help. Keeping you in my thoughts and prayers 🙏

7 days ago
A MyMyelomaTeam Member

You really are going thru a lot. What is your age and you able to do physical exercise?

October 25
A MyMyelomaTeam Member

Mohd, yeah 65 is tough alone, I believe you have the will and knowledge to get your MM under control, Maybe like Donna suggests getting a specialist if possible could help. Not sure if you have all the options we have in USA. Then again China is supposed to be leading in MM research now, especially Car-t, you are close enough to maybe take a medical tour there see if they can help?

7 days ago
A MyMyelomaTeam Member

Yes
RickDelaTorr

Can be alot for a person who doesn’t know the Basics but times and times there is a difference 65yrs Soccer player qualified for physical fitness soccer team
Long distance runner cross country

Doing housework is enough for me to get active 1 sweeping rinse the floor ,2 washing the toilet 3 laundry breaks time 1200-1400 sleep 💤 and report and call the HigherPower

Evening some reading and myeloma chats with out this team l am lost 😞 Patience, sharing, caring deep believers in God Allah Mighty Lord Jesus is the key to unlock our egos and mask

Prayers to the Myeloma members who is with us We can doit together
"Whoever would be pleased for The Mighty lord to answer him during times of hardship and difficulty, let him supplicate often during times of ease."

October 26 (edited)

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