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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question πŸ’­
Bethesda, MD
May 14
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End-Stage Myeloma: What You Need To Know Read Article...
A MyMyelomaTeam Member

Seems if you don't handle treatments well and your MM is hard to treat it could take years off your life same as heart disease or other chronic conditions. But there are many who are very responsive to treatment and go into deep remission before much damage is done & basically live a normal life. And most MM patients clean up their diet do more exercise, so it is possible some extend their life. But for some, death does come quick & painful.

May 16
MyMyelomaTeam

This is one of the most honest and important questions anyone with myeloma can ask. The short answer is: not necessarily, but it's complicated.

Myeloma is still considered incurable for most people, meaning it tends to come back even after successful treatment. However, "incurable" doesn't mean "immediately fatal" β€” many Show Full Answer

This is one of the most honest and important questions anyone with myeloma can ask. The short answer is: not necessarily, but it's complicated.

Myeloma is still considered incurable for most people, meaning it tends to come back even after successful treatment. However, "incurable" doesn't mean "immediately fatal" β€” many people live for years, even decades, in remission. Here's what research and medicine currently tell us:

- More than 90% of people respond well to their first round of treatment
- Some people achieve such deep remission that myeloma never returns
- Even when no cancer is detectable, tiny amounts of myeloma cells may remain β€” this is called minimal residual disease (MRD)
- For some people, myeloma eventually relapses; for others, it never does Newer treatments continue to improve survival significantly. Drugs like daratumumab (Darzalex) and elotuzumab (Empliciti) have added years to life expectancy for people with relapsed myeloma.

Ongoing research is actively working toward treatments that could lead to true, lasting cures. So while myeloma is serious, the outlook continues to improve β€” and that's genuinely encouraging.

May 14

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A MyMyelomaTeam Member asked a question πŸ’­
San Jose, CA

A MyMyelomaTeam Member asked a question πŸ’­
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what