Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

For those of you with MGUS or Smoldering MM, do you have hot flashes?

A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA

I’m 68 and having hot flashes like I’m still experiencing menopause. I am not in treatment and never have been. It’s annoying, but also worrying , because MM might be causing it.

October 22 (edited)
 · 
Reactions

Answer Summary

Members with MGUS and Smoldering Myeloma rallied around the question of whether hot flashes and night sweats are connected to their diagnosis,... Read more

Members with MGUS and Smoldering Myeloma rallied around the question of whether hot flashes and night sweats are connected to their diagnosis, with many sharing that they experience these symptoms regularly and had assumed they were unrelated to their cancer. Several members described frustrating experiences with doctors who dismissed or minimized the symptom, while others noted that their medical teams actively ask about night sweats at each visit. A recurring theme was the comfort found in learning they were not alone, with many saying the shared experiences helped them feel more confident bringing the topic up with their doctors.

A MyMyelomaTeam Member

@A MyMyelomaTeam Member,
Congratulations! Your strength to deal with MM is amazing!
Paula🌹

October 22
MyMyelomaTeam

Hot flashes are actually a recognized experience for people living with myeloma and its precursor conditions. You're definitely not alone in this!

One MyMyelomaTeam member shared: "I have hot flashes, and they are very annoying because sometimes I can't sleep at night." Sound familiar? Hot flashes can be triggered by several Show Full Answer

Hot flashes are actually a recognized experience for people living with myeloma and its precursor conditions. You're definitely not alone in this!

One MyMyelomaTeam member shared: "I have hot flashes, and they are very annoying because sometimes I can't sleep at night." Sound familiar? Hot flashes can be triggered by several factors related to your condition, including:

- Certain medications used in treatment or monitoring
- Your body's response to abnormal plasma cell activity
- Radiation therapy or other interventions

They can also lead to night sweats, which can disrupt sleep and overall quality of life. It's worth bringing this up with your care team. They may suggest options to help manage hot flashes, such as:

- Hormone therapy in some cases
- Using a fan at night
- Wearing loose, breathable clothing to bed
- Relaxation techniques like deep breathing

Since good sleep is really important for your overall health, don't brush this off as just a nuisance — it's worth addressing!

October 22
A MyMyelomaTeam Member

@A MyMyelomaTeam Member,
Thank you for your service.🇺🇸 You are stronger than me. After watching my mom suffer through treatment, my intuition says, don’t do it. Of course that was strong chemotherapy for ovarian cancer, but I’ve seen the posts of those who suffer through treatments. I know my body is super sensitive to drugs and I have genes that don’t allow me to metabolize them. I’m going to try really hard to stay natural. God bless all of us! May we all be healed of this terrible cancer and if not, be brought to everlasting life with Jesus.🛐🙏🏻✝️
Paula🌹

October 23
A MyMyelomaTeam Member

I have sometimes.

October 22
A MyMyelomaTeam Member

Hi Paula. Thankyou for bringing this up. I have been thinking my hot flashes returned because of the Covid vaccines but you are right the return of my hot flashes does also seem to coincide with my diagnosis with SMM as well. I will never really know why they happened but I can say they do not seem to be going away but getting worse if anything.

October 22

Related Questions

View All

How long is the progression from smoldering?

A MyMyelomaTeam Member asked a question 💭
Atlanta, GA
June 10, 2021

Is amylodoisis a form of multiple myeloma and is it more aggressive ?

A MyMyelomaTeam Member asked a question 💭
Las Vegas, NV
August 31

If SMM why state myeloma parameters followed?

A MyMyelomaTeam Member asked a question 💭
Foothills of NC
October 14, 2022

Can You Prevent MGUS From Progressing?
Smoldering Multiple Myeloma: Your Guide
MGUS vs. Multiple Myeloma: What’s the Difference? (VIDEO)