Yes, IgM myeloma is indeed quite rare! Finding a support group specifically for IgM myeloma can be tricky, but there are some great options that can still offer meaningful support.
Here are some places to look:
- MyMyelomaTeam – Already a member, so this is a great starting point! While it covers all myeloma types, there are Show Full Answer
Yes, IgM myeloma is indeed quite rare! Finding a support group specifically for IgM myeloma can be tricky, but there are some great options that can still offer meaningful support.
Here are some places to look:
- MyMyelomaTeam – Already a member, so this is a great starting point! While it covers all myeloma types, there are members with rare subtypes who share experiences and offer support
- International Myeloma Foundation (IMF) – Offers resources and support networks for all myeloma types
- Multiple Myeloma Research Foundation (MMRF) – Another strong resource with community support options
- Your oncology team – They may know of specialist groups or connect you with others who have IgM myeloma
Even if a group is not exclusively for IgM myeloma, many of the treatment challenges, emotional experiences, and day-to-day management tips are shared across myeloma types. Connecting with others who truly "get it" can make a real difference.
September 28
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