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A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

I having eye surgery appt and new blood test on Friday 25 sept because previous blood test result which the white blood count was 2.7 and platelets are 64 very low
So before the eyes cataract surgery confirmed the blood test results must be back to stable range and Heatomology and oncology doctor will have to approve first

I am writing this is to get answers or advice if all members myeloma team that who have 2 illnesses cancer and diabetes, cancer and kidney disease ir any 2 cancer team have… read more

September 23 (edited)
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Answer Summary

Members rallied around Mohammad Sukor's question about whether to proceed with cataract surgery while managing myeloma, diabetes, blood... Read more

Members rallied around Mohammad Sukor's question about whether to proceed with cataract surgery while managing myeloma, diabetes, blood thinners, and low platelet counts. Several members with similar complex health situations advised waiting for blood levels to stabilize, coordinating approval from all specialists, and understanding the real risks of stopping blood thinners before surgery. A recurring theme was the importance of self-advocacy and education, and the thread closed on a hopeful note as Mohammad shared improved lab results and a decision to pause surgery, met with warm prayers and encouragement from the community.

A MyMyelomaTeam Member

Mohammad, I have had similar issues with multiple problems (diabetes, two stents, kidney disease, blood thinners, an enlarged prostate and anemia) and needed cataract surgery. All of my doctors (hematologist, oncologist, GP, nephrologist, and cardiologist) advised: 1) that I wait for my blood to stabilize 2) stop taking blood thinners three days before surgery 3) do not take Tamsulosin for a week before surgery (if taking).

Your doctors will probably recommend similar actions. My first cataract surgery right eye was perfect, my second cataract surgery left eye went terribly wrong and took months to get it fixed due to doctor error.

You are going through a lot and I pray for our Lord to aid you through all of this. Best wishes and prayers!

September 23
A MyMyelomaTeam Member

I think we must all educate ourselves and then make our own decisions in life - what I choose to do will not suit everyone - nothing cures everyone of everything -Stay Well- Alex .

September 25
A MyMyelomaTeam Member

I keep you all in my prayers - I was impressed with what I read about cancer treatments in China- In Australia ,we now have Phenasan, Trisenox and Arsenol -These are all based on Chinese medicine : The Chinese have been treating various cancers for many hundreds of years .
Love is all we are, and faith is all we can be ! Get Well Soon - Alex .

September 23
A MyMyelomaTeam Member

It depends on how bad your cataracts are. Is this optional? Infection can result and make things worse. Being off blood thinner with stents is risking blood clots, bleeding or stroke. Know the risks. My mother-in-law went blind in her eye. I’ve noticed that doctors don’t understand MM, cancer and other medical issues and how it can impact a decision, so they tell you there is little risk. Unfortunately, they don’t see the whole picture.
Paula🌹

September 23
A MyMyelomaTeam Member

Thank you
AlexWhiteside

Sharing
Alhamdulillah,(praise to Allah)
I received my latest lab results from Hospital and the news is highly reassuring. My liver panel is
90% perfect , my kidney function is holding steady and safe, no abnormal M-protein with a completely normal Kappa/Lambda ratio. which explains
my low platelets, mild anemia, and why I feel so deeply tired and sleepy after lunch .
This morning the chemo nurse called me saying doctors has proceed on Valcade injection and Linalidomide salfasalazin still paused till 14 Oct and then appt with both doctors .and another blood test
to be done to discuss about changes or lower the dosage

Oncology appointment on 6 Nov F B C
Chest X/Ray ECG and consultation on my
Lung adenacarcicoma and look at the results

Taking the time to truly learn what my blood results mean has given me so much peace of mind. I am not just passively going through this; I am actively understanding my body so I can make sure with my specialists to get the best decisions for my health.

To everyone fighting their own battles: keep educating yourself, listen to your body when it demands rest, and stay strong.Stay Well! 💪

When it is difficulties and hardships we will must be patience to hold back from those things and done with prayers will be the eases
The most important thing to maintain your condition be consistent and steady
continuously and control you can manage it

“And as religion says your pain and idea is bless you will be in the special place”

MohammadSukor

September 26

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