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A MyMyelomaTeam Member asked a question 💭
Hollis AK

Medicare/Medicaid still not accepted for clinical trials?

3 days ago
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Participating in Clinical Trials for Multiple Myeloma: 4 Possible Benefits and 3 Risks Read Article...
A MyMyelomaTeam Member

Yes, I participated in MM Clinical trial, Phase-II for five years and costs of over million dollars per year including drugs were covered by trial and Medicare and Blue cross. I was fortunate to have achievd trial's end goal of MRD (-ve) in Bone marrow biopsy! It is a very tough criteria to pass through before they accept you as trial participant, however! Good luck, I will encourage everyone to consider clinical trial, if one is available and affordable to travel and participate. Dave P.

3 days ago
A MyMyelomaTeam Member

I'm curious to know if any clinical trial accepts patients that are in remission and off of treatments; I doubt it, but asking anyway. Thinking a trial to stop all MM symptoms and for how long.....about

3 days ago (edited)
A MyMyelomaTeam Member

Kathryn MMRF probably has a list of all clinical trials . They would all have different criteria.

3 days ago
MyMyelomaTeam

Great question! The good news is that Medicare and Medicaid can actually help cover costs related to clinical trials. Here's a general breakdown of how costs typically work:

- Trial sponsors (drug companies, government grants, or research foundations) usually cover the research-related costs, including access to the Show Full Answer

Great question! The good news is that Medicare and Medicaid can actually help cover costs related to clinical trials. Here's a general breakdown of how costs typically work:

- Trial sponsors (drug companies, government grants, or research foundations) usually cover the research-related costs, including access to the investigational drug
- Your insurance (including Medicare/Medicaid) may be asked to cover your routine myeloma care costs during the trial
- For those without insurance, clinical trials can sometimes provide access to treatment that might otherwise be unaffordable It's always worth having a direct conversation with your oncologist and the clinical trial team about what costs will be covered before enrolling. You can also explore current myeloma trials at clinicaltrials.gov.

The Lazarex Cancer Foundation is another helpful resource — they can help connect you with appropriate trials and even offer financial assistance for participation.

3 days ago
A MyMyelomaTeam Member

Good question

3 hours ago

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