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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Bethesda, MD
August 29
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A MyMyelomaTeam Member

There are some that have lived 30 years! I'm 7 years post diagnosis, 6 years post SCT, with no relapse and enjoy every day with no symptoms. It is possible, depending on your individual circumstances, to live a very long life indeed. My doc doesn't think it is likely to ever come back. All the best to you!

August 31
A MyMyelomaTeam Member

I was told that “We don’t come stamped with an expiration date”. This is a treatable, manageable, unpleasant disease. Take each day as a gift, live like you are dying… nobody gets off this world alive.

August 31
A MyMyelomaTeam Member

Michael,
After doing lots of research, I see once I progress to MM I will have 2 1/2 years, because I will be high risk. My cousin has had it for over 20 years and another cousin for over 10 years. Everyone is different. I should have progressed already. I have not. Diet, and supplements can make a huge difference. Zinc supports TP53 which prevents tumors, so I take that. Calcium, magnesium, D3 and K2 keep the bones strong, so I take that. Check out “Chris beat cancer.” There are others too. The maker of Astaxanthin beat incurable blood cancer. He has a company called ValAsta, who makes Astaxanthin,which cured him. The patients that do the best are the ones on a Mediterranean or Vegetarian diet.
Paula🌹

August 29
MyMyelomaTeam

This is such an important question, and it's great that you're being proactive about your care. The honest answer is that life expectancy with myeloma varies widely from person to person — there's no single number that applies to everyone.

Factors that can influence outcomes include:

- Your specific type and stage of Show Full Answer

This is such an important question, and it's great that you're being proactive about your care. The honest answer is that life expectancy with myeloma varies widely from person to person — there's no single number that applies to everyone.

Factors that can influence outcomes include:

- Your specific type and stage of myeloma
- How well the disease responds to treatment
- Your overall health and any other conditions
- Access to newer therapies and clinical trials
- How closely you follow your treatment plan What research and real-world experience does show is that outcomes have improved significantly in recent years thanks to advances in treatment. Many people are living longer, healthier lives with myeloma than ever before.

Working closely with a knowledgeable oncologist, staying on top of your treatment plan, and being open about your goals can make a real difference. One MyMyelomaTeam member shared that maintaining a positive attitude, proper nutrition, exercise, hydration, and good sleep all contributed to reaching remission.

The best person to give you a personalized picture of your outlook is your oncologist, who knows your specific case inside and out. Don't hesitate to ask them directly — it's one of the most important conversations you can have.

August 29

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