@A MyMyelomaTeam Member, Gary do your research as with the new meds out you more than likely don’t need to go through the CAR T-cell. I’d ask what your options are. There has been just a recent approved med that is supposed to give really good results. It was posted somewhere on this site. Also, ask what you have to do after the procedure. I hate to hear people go through this when the new meds work so well. I sure wish you all the best!

Mentioned Users

A MyMyelo...

Gary, like Jeff said, do your research. The Healthtree Foundation website has some videos on the side effects of car t therapy and other immunotherapies. I have been reviewing the side effects of car t and bispecifics. We need to be informed to be able to make the right decisions. Iberdomide just got approved. I'm glad we have options.

The problem with myeloma treatments is there is no one size fits all. Whilst one particular drug may work wonders for one person doesn't mean it will be as effective on someone else. You can only be guided by your haematolgist/oncologist. I am on 4th line treatment and was diagnosed in 2018. I am currently on elranatamab which is a bispecific drug and I am responding very well to it. However, that doesn't mean it would be suitable if you are at a different stage on your journey.

Thank you all for your comments. One of the beauties about car t is no more cancer meds after. I’m willing to take that chance. I’ve read on the new meds like the 2 combination of shots, the side effects of the one shot are terrible. If you are a praying person I’d appreciate your prayers.

Hi Gary - hope I'm not too late to the party. I started Tecvayli/Teclistamab the first week of July. After an unexpected hospital visit on July 25, the team checked my myeloma labs. The good news - my lambda light chain number came down significantly, as well as my IgA number. During the hospital stay, the attending suggested we add Darzalex to the treatment, which they did in August. I believe I have had 3 of the combination treatments. I'm uncertain when they will recheck the MM labs, but I imagine in a couple of week. Please note the 2nd hospital stay had nothing to do with Teclistamab. A nasty MM lesion had found its way into my spinal canal causing stenosis and pain. I've had myeloma 10 years, so it appears I'm in the same ballpark playing a different game now. I have prayed for acceptance, which has brought peace.
That being said, Tec-Dara is a much easier road than a stem cell transplant, because I have done both now. However, all myeloma diagnoses are very individualized. Consult your Care Team and pray about it. Blessings. 🙏🏻