Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I had Car T Cell a year ago and I was wondering if has had the same Treatment how long was it before you relapse as of now I'm feeling good

A MyMyelomaTeam Member asked a question 💭
Powder Springs, GA

I was diagnose in June of 2018 relapse 3 times since then but you know it's always on your mine no matter how good you feel. I'm thanking the God for the Doctors I have

August 17
 · 
Reactions
A MyMyelomaTeam Member

Thanks

August 17
MyMyelomaTeam

What a journey you've been on since 2018 — and feeling good a year after CAR-T is genuinely wonderful news! It's completely understandable that it stays on your mind even when things are going well. That mix of gratitude and quiet worry is something so many people with myeloma carry.

A MyMyelomaTeam member shared something Show Full Answer

What a journey you've been on since 2018 — and feeling good a year after CAR-T is genuinely wonderful news! It's completely understandable that it stays on your mind even when things are going well. That mix of gratitude and quiet worry is something so many people with myeloma carry.

A MyMyelomaTeam member shared something that really resonates here: "It's a marathon." That perspective, along with staying engaged with your care team and keeping up with monitoring, seems to make a real difference. As for how long remission lasts after CAR-T, recent research offers some real hope. A study following people with relapsed or hard-to-treat myeloma found that 1 in 3 people who received CAR-T therapy (specifically cilta-cel/Carvykti) remained progression-free for at least five years after a single infusion — with no ongoing treatment needed.

Of course, everyone's experience is different, and results vary. The key things worth keeping in mind:

- Regular monitoring helps catch any changes early
- Staying close to your care team and reporting new symptoms promptly matters
- New treatment options continue to emerge, so asking your doctor "what's on the horizon?" is always a smart move

August 17

Related Questions

View All

Is Multiple Myeloma curable?

A MyMyelomaTeam Member asked a question 💭
Hamilton, OH
September 5, 2022

I would like to hear from people who chose to NOT have a Transplant.

A MyMyelomaTeam Member asked a question 💭
Chicago, IL
August 13

Should I stop Revlimid maintenance

A MyMyelomaTeam Member asked a question 💭
Breckenridge, CO
August 12

CAR-T Cell Therapy for Multiple Myeloma: What Is It?
33% Stay Myeloma-Free 5 Years After CAR T-Cell Therapy
Bispecific T-Cell Engagers for RRMM: 6 Facts About a New Type of Treatment
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In