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A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

Has anyone else on maintenance therapy dealt with a lower resting heart rate or severe daytime sleepiness, and how did your doctors handle it?

August 4
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Answer Summary

Members responded warmly to a question about managing lower heart rate and daytime sleepiness during maintenance therapy, sharing how powerful... Read more

Members responded warmly to a question about managing lower heart rate and daytime sleepiness during maintenance therapy, sharing how powerful cancer medications like Velcade, Lenalidomide, and Osimertinib can cause overwhelming afternoon fatigue and heavy eyes. Several members offered practical tips, including adjusting medication timing with a pharmacy nurse's help, propping up with pillows for breathing difficulties, and pacing activity with rest breaks. A recurring theme was the importance of staying proactive, discussing all new symptoms with doctors, and leaning on faith and community support while continuing treatment even when M-protein is undetectable.

A MyMyelomaTeam Member

Mohammad,
When my heart was having troubles, I was sleeping most of the day. I wasn’t using a C-Pap machine then and would stop breathing. The lungs affect the heart. The heart affects the lungs. I hope the medicine they give you will help.
Paula🌹

August 5
A MyMyelomaTeam Member

SalliKuncewicz

I also done the bronchoscopy/endoscopy after my Pat scan
However, doctors perform my surgeries without general anesthesia by putting me to sleep ,instead for local anesthesia to numb only the specific surgical area while the l stays completely awake.
surgeries without general anesthesia
And the Doctors also spray my nose or throat with a special numbing medicine so do not feel the tube as I do not have much.Breathing on my own. And the doctor wants me to listen to his discussion with the nurse so I can understand what is happening and just told me not to move even an inch.
Before I did my MRI brain scanning
Thank you

Mohammad

August 4
A MyMyelomaTeam Member

Mohammad,
Why would you take Velcade if your MM is not showing up?
Paula🌹

September 26
A MyMyelomaTeam Member

Mohammad, You may want to schedule taking your medications when you know you will be awake. Between 2 and 3 PM, I know I might be napping.
Paula🌹

August 8
A MyMyelomaTeam Member

Mohammad,
When I had Covid and could not breathe if I laid down, I slept in a recliner, but did not recline the whole way. Now, if I am having breathing issues, even though I use a C-Pap machine, I prop myself up with pillows to sleep. It works well. When my mother-in-law's lungs were filling with fluid, when she was dying, we propped her up with pillows.
Paula🌹

August 7

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A MyMyelomaTeam Member asked a question 💭
Indianapolis, IN