Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 29
 · 
Reactions
A MyMyelomaTeam Member

Stephanie,
You need an MM Specialists. I’m not sure they have any in Las Vegas. You could probably do a virtual visit with a MM Specialist at City of Hope. X-rays are useless for MM. Have you had a bone marrow biopsy? FYI, Kappa tends to clog the kidneys. You need to be watched closely and please drink pure water more than any other drink.
Paula🌹

August 1 (edited)
A MyMyelomaTeam Member

I had MGUS for 8 years with high light chains. I was just watched carefully. Then I got rib pain. Thought it was because I was carrying my dog. Had a PET scan. Had lesions in my ribs. Started treatment. It’s been 9 months. My bmb started at 40%. Last one was 3%. Treatment is working. I’m now on maintenance.

July 30
A MyMyelomaTeam Member

Stephanie,
The Multiple Myeloma Research Foundation has a list of MM Specialist from around the country. Check it out at HTTPS://www.themmrf.org
Paula🌹

The MMRF | Multiple Myeloma Research Foundation
The MMRF | Multiple Myeloma Research Foundation
August 3
A MyMyelomaTeam Member

Currently looking for a second opinion with a different hematologist I’m not trying to sit around and wait and watch for my kidneys to get bad or something else first before they do further testing

August 2

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
West Monroe, LA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In