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I am terrified of the chemotherapy process—where the immune system drops to zero—because I constantly suffer from muscle pain; plus, I only have one kidney, and I don't know if my body could withstand the procedure. There is also the financial aspect and the pain it might cause my children to see the physical toll it takes, and so on. The doctors tell me it is my choice, and honestly, I don't know what to do. 😭 Can anyone help me?
If you are in remission don’t do the transplant. Stay on meds for two years and as long as your blood work is good stop the meds. Unfortunately you have to determine if doctors are doing the right thing for the individual or making money for their practice. Read read read so many NEW articles say that the meds work and you don’t have to go through a transplant. I feel so bad that so many people just follow what their doctors say and don’t challenge them. I of course can’t give you medical advice but ask lots of questions and check out current articles and then make your decision. If you are feeling scared and that you don’t want to go through this then listen to yourself. Best wishes!
It's a discussion you have to have with your family and medical team. You could ask about getting your stem cells collected and keeping transplant in reserve for later if needed. Do you know your mrd status?
The physical pain I am currently experiencing shifts to different parts of my body—sometimes the buttocks, hands, arms, or shoulder blades—and I believe it is muscular in origin. I consulted a palliative care specialist who simply prescribed painkillers without investigating the matter further. I would like to know the cause of such intense muscle pain: what tests should be performed to determine the underlying issue? I also feel almost constant pain in my spine and right femur; I was referred to a bone specialist, but they only prescribed more painkillers instead of offering a real solution. Regarding the transplant, I am unsure what my physical condition would be afterward, given my current state.
This is such a deeply personal decision, and it's completely understandable to feel overwhelmed. There is no single "right" answer here — what matters most is that the choice reflects your values, your health situation, and your quality of life.
Here are some key things worth considering: The case for transplant
- A stem Show Full Answer
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