I am on Revlimid maintenance and use Colestipol that was prescribed by my Multiple Myeloma Specialist. This addresses diarrhea ,some IBS,and bile acid malabsorption. My Revlimid experience is that I have IBS from dairy and used a Fodmap process to analyze food sensitivities. Talk with your healthcare team to confirm this for your situation. I hope this helps.
July 22
Try B complex vitamins which can help clear out the built up fluids.
Paula🌹
July 21
Bloating is a real and frustrating issue for many people with myeloma. It can stem from several causes related to both the disease itself and its treatments.
Common causes include:
- Corticosteroids (like dexamethasone) — a very frequent culprit for bloating, gas, and constipation
- Revlimid (lenalidomide) — can trigger a Show Full Answer
Bloating is a real and frustrating issue for many people with myeloma. It can stem from several causes related to both the disease itself and its treatments.
Common causes include:
- Corticosteroids (like dexamethasone) — a very frequent culprit for bloating, gas, and constipation
- Revlimid (lenalidomide) — can trigger a condition called bile acid malabsorption (BAM), leading to bloating and diarrhea
- Hypercalcemia — high calcium levels caused by myeloma can lead to abdominal pain and bloating
- Constipation — a common side effect of many myeloma treatments
One MyMyelomaTeam member shared, "The only drug that gives me grief are the steroids with bloating, gas and constipation." Another noted a bad reaction to Revlimid causing abdominal bloating and gas pains, and their doctor paused all medications for a week to let their system settle. There are some ways to help manage bloating:
- Stay hydrated — important during any myeloma treatment
- Diet adjustments — your care team can suggest changes to ease discomfort
- Stomach massage — can help encourage digestion and relieve bloating
- Talk to your doctor before trying any over-the-counter remedies, as they can interact with your treatment
Never stop or adjust your medications on your own — always check with your healthcare provider first. If bloating is significantly affecting your quality of life, bring it up at your next appointment so your treatment plan can be reviewed.
July 21
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