my husbands JNJ trial is just a one drug infusion once a month...so is different than yours...glad you're doing good....we're just getting started and has been rough so far...only 2 wks in
July 14
I have been on the Johnson and Johnson clinical trial since 1-2-24. I started on Talvey, Dara, Dex and now only on Tavley & Dara. I had reactions such as loss of nails and loss of taste. I still don't have my taste back 100%. The good news is that I'm MRD Negative since 1-2-25. Good luck on his journey.
July 14
What can you expect from your husband's participation in the JNJ trispecific drug clinical trial?
First, it's wonderful that your husband has access to a cutting-edge trial — that takes courage and hope in equal measure!
Clinical trials like this one are carefully designed to test new treatments. Here's what's generally Show Full Answer
What can you expect from your husband's participation in the JNJ trispecific drug clinical trial?
First, it's wonderful that your husband has access to a cutting-edge trial — that takes courage and hope in equal measure!
Clinical trials like this one are carefully designed to test new treatments. Here's what's generally involved:
- Enhanced monitoring — participants are closely watched by a dedicated research team
- Regular assessments — more frequent check-ins than standard care
- Costs typically covered — the trial sponsor usually covers research-related costs
- Informed consent — your husband can ask questions at any stage
The research team will be tracking both how well the treatment works and any side effects. It's really important to report any new symptoms promptly to the trial team, no matter how minor they seem.
Since this is a newer trispecific antibody approach, your husband's oncology and trial team are truly your best resource for what to expect specifically with this drug.
It would also be worth posting your question in the MyMyelomaTeam community feed, as other members who have started the same trial may be able to share their firsthand experiences with you.
July 14