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I told my hematologist that my hands and feet are numbing more often now and I have been getting UTI I asked why

A MyMyelomaTeam Member asked a question 💭
Fresno, CA
June 27
 · 
Reactions
A MyMyelomaTeam Member

Priscilla,
Are you still Smoldering? I am and I have neuropathy going up my arms and legs. I never had UTI’s until now. Our immune system is so low, infections are more common. When was the last time your MM Specialist ordered blood tests? You should be getting them every 3 months. I’m taking B complex vitamins and extra B12 for the neuropathy. Also, Nutritional Yeast which naturally has lots of B vitamins in it.
Paula🌹

June 27 (edited)
A MyMyelomaTeam Member

Additional natural yogourt in your diet can help as well

July 3
A MyMyelomaTeam Member

@PricillaResendez and @A MyMyelomaTeam Member
I had recurring UTIs in my younger and healthier days. This supplement was recommended and I’ve not had one since. I continue to take with my doctors blessings! It’s all natural. From Amazon: D-Mannose 1000mg Per Serving - Cranberry & Hibiscus - Effective Fast-Acting, Flush The Impurities for Bladder, Urinary Tract Health Support Supplement, for Women and Men, USA Bottled - 180 Capsules
I take two a day. Since I started treatments, I seem to urinate more frequently. I pray I continue to be UTI free and that this might help you! 🙏

June 30
MyMyelomaTeam

It's great that you brought this up with your hematologist — those are important symptoms to flag. The increasing numbness in your hands and feet is likely related to peripheral neuropathy (PN), which is very common with myeloma. Around 75% of people with myeloma develop it at some point.

PN can be caused by two things:

- Show Full Answer

It's great that you brought this up with your hematologist — those are important symptoms to flag. The increasing numbness in your hands and feet is likely related to peripheral neuropathy (PN), which is very common with myeloma. Around 75% of people with myeloma develop it at some point.

PN can be caused by two things:

- The myeloma itself — abnormal proteins produced by myeloma can damage nerves over time
- Myeloma treatments — certain medications, particularly immunomodulatory drugs, can also affect the nerves

Symptoms can range from mild tingling to more intense sensations. As one MyMyelomaTeam member described it as "burning, tingling, numbness" and even "a spastic electrification of nerve endings" at night. If the neuropathy is worsening, it's worth asking your hematologist whether your current treatment plan needs adjusting. Sometimes a change in medication can significantly reduce symptoms.

Regarding the UTIs, myeloma can weaken the immune system, making it harder for the body to fight off infections — including urinary tract infections. This is worth discussing further with your care team so they can monitor and help manage it alongside your myeloma treatment.

June 27
A MyMyelomaTeam Member

I see my hematologist every 2 months for blood test I just saw him on Friday the 26th he ordered the biopsy and pet scan

June 28

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