Lambda light chains MM is twice as aggressive as Kappa. I have it along with the 17p (TP53) deletion detected and beta-2-microglobulin of 5.56. Making me stage 3. But don't fret. I was diagnosed in March '24 at age 67 turned down the SCT and achieved MRD negative and just recently got off all medication. There is either a lot they still don't know or we are all so different that results vary wildly.

I've received several of my blood tests......All are within range. Kappa is " abnormal", but apparently not abnormal enough. I'll take it.....😊 protein electrophoresis, serum is still undetectable since 2013, and I still don't quite grasp the idea of it. But, I'll take it😉

Sally, protocol at Kaiser is 2 years to get a deep remission, {not sure exactly what that means?) and are MRD negative before they consider giving you the option of being drug free. I was just over 2 years in remission when I got a ClonoSEQ that confirmed my negative -6 and was given the option to get off all medications and just monitor, bloodwork once a month for 3 months then every 3 months if I remain stable.

Debbie, I think you will find that you will get more straight and thorough answers from members in this forum that you would from AI. You may get conflicting answers since everyone's experience is somewhat different. But they will come from actual experiences.

Totally agree Kathryn, you have to be your own advocate, they have no idea how you are feeling. All those drug free years are quality years that you could have been beating up your body and probably losing some of the medications you would need in your toolbox in the future.