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A MyMyelomaTeam Member asked a question 💭
South Casco, ME
June 12
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Answer Summary

Members shared their experiences being diagnosed with multiple myeloma at various ages, with starting light chain and immunoglobulin numbers... Read more

Members shared their experiences being diagnosed with multiple myeloma at various ages, with starting light chain and immunoglobulin numbers ranging from 118 all the way up to over 9,000. Several members offered helpful guidance on understanding lab reports, including tracking kappa and lambda light chains, knowing the difference between IgG and IgA markers, and using tools like Google AI to make sense of complex results. A recurring theme was hope and resilience, with many members reaching remission, one member fighting for 16 years, and the community encouraging loved ones to advocate for dose adjustments, ask questions, and lean on each other for support.

A MyMyelomaTeam Member

I am asking for the light chain number
My wife says she has seen over 4,000.
Thankfully, my wife's doctor kept a close and hers was 118 at the age of 69. She is about to go into remission after 8 months of therapy. We will have been married 46 years this August.

June 12
A MyMyelomaTeam Member

I was 63 when I was diagnosed. I just retired. I have been in remission for 3 plus years.

June 15
A MyMyelomaTeam Member

Hi 4000 must be for another portion of a lab report.
Example 6/11/25 my immunoglobulin G was 8081. It is now 4078. I am on my third line of treatment.
Kappa was 82.4, lambda 5.4 and ratio 15.26.

Not sure the 4000 you mentioned is light chain. If possible get a print out of your labs.

DX was 5/27/25. First set of labs 6/11/25, first tx of Darzalax and Velcade and dex on 7/3/25.
Last labs show immunoglobulin G 4078.
Kappa 37.3, lambda 4.2 and ratio 8.9.

I’m sharing that to show how the numbers on my labs read. They are smaller than the 4000 mentioned in your post and have a decimal point in the value.

Try to use Google AI and they can help decipher the information you are seeking.

All the best

June 15 (edited)
A MyMyelomaTeam Member

Never made it to remission but I am fighting it now for 16 years. Chemo every month but it’s better than the alternative. 🥰🥰

September 8
A MyMyelomaTeam Member

67 in remission 2yrs.

June 18

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A MyMyelomaTeam Member asked a question 💭
South Casco, ME