Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Jamestown, ND

I am in remission fir almost 2 years but still have constant fatigue.

May 31
 · 
Reactions
A MyMyelomaTeam Member

When I was in remission, I would still suffer from fatigue. I did have more good days than bad days.

May 31
A MyMyelomaTeam Member

Just Darzalex injection once a month

May 31
A MyMyelomaTeam Member

Dar3, are you still on chemo?

May 31
A MyMyelomaTeam Member

Not sure it will ever go away especially if you are getting maintenance drugs. I had my sct in January 2016 in remission for 7 1/2 years on a maintenance drug and have persistent fatigue Rep lapses and back in remission on 1 mg pomalyst and Dara faspro and still have fatigue
I hope for you it goes away

May 31
A MyMyelomaTeam Member

Hello? treatment, 9 years? Remission years? WTF!. In 2008 I was told I had 'six months, maybe'. John Hopkins. In 2010, Kaiser Permanente, my insurer and health care provider in one, took me off chemo since there were no signs of it in my blood. I've been free of chemo since. with annual bloodwork followed by a video conference with my oncologist. "There's your first clue Sherlock!

In my past life I spent ten years taking down medical care providers who were doing wrong. And I thought the sh.t folks are pulling in MN was bad.!

Get a copy of your past bloodwork. It's yours! get folks on this site to decipher it for you if need be., BTW, Revlimid is about $12,786.00 a script. Times?

Google ProPublica: the price of remission.

Chemo saved my life, once done it's used toilet paper, worse, it's toxic!

Trust but verify

You are now educated consumers.

June 1

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭

A MyMyelomaTeam Member asked a question 💭
Barcelona