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May 30
Yes, some MyMyelomaTeam members have been diagnosed with myeloma that already included extramedullary disease (EMD) at the time of diagnosis. EMD means myeloma cells have spread outside the bone marrow, forming tumors in soft tissues or organs.
Extramedullary disease at diagnosis is not extremely common, but it does Show Full Answer
Yes, some MyMyelomaTeam members have been diagnosed with myeloma that already included extramedullary disease (EMD) at the time of diagnosis. EMD means myeloma cells have spread outside the bone marrow, forming tumors in soft tissues or organs.
Extramedullary disease at diagnosis is not extremely common, but it does happen. It affects roughly 7% to 15% of people newly diagnosed with myeloma. Extramedullary tumors can develop in several locations, including:
- Soft tissues next to bones
- Sinuses, nasal cavities, or throat
- Lymph nodes
- Organs such as the lungs, liver, spleen, skin, or breasts
Treatment for extramedullary disease may involve a combination of surgery, radiation, chemotherapy, or other myeloma-specific therapies. It's worth having an open conversation with your oncologist about the best approach for your specific situation, as treatment plans can vary depending on where the disease has spread.
May 30
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