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Limit protein intake due to stage 3 b kidney disease.

May 28
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A MyMyelomaTeam Member

Joseph,
I’m always talking about my mom, because she had cancer treatment and I got to watch what happened. She always took 2 teaspoons of Nutritional Yeast with juice. If she took it with milk, she added a teaspoon of unsulphered blackstrap molasses. She never lost weight and never got neuropathy. Nutritional yeast has lots of B vitamins. All her friends lost weight when they got cancer, and she was actually looking forward to losing weight, but was disappointed. She only lost weight when she could o longer eat or drink much, which was the last few months of her life. I would like to lose weight too, but I’m trying to keep my neuropathy in check, so I will continue to take the nutritional yeast. I like Bob’s Red Mill brand because it is not bitter and mixes well. I buy it in the baking section of the grocery store. If you can’t find it there, Health Food stores will have some.
Paula🌹

May 28
A MyMyelomaTeam Member

Joseph, eat baked goods, cakes pies, dinner rolls. I’ve had just the opposite problem I’ve been gaining weight because I have a new hobby of making bread and all kinds of baking as it something that doesn’t wear me out too bad. The problem being I have been eating what I make and need to give it away instead of eating myself. I’m now counting calories and hope to drop some weight. It does sound that due to your kidney issues that, that may be the reason you can’t put weight on. I sure wish you all the best! 💪

May 28
MyMyelomaTeam

Managing weight loss with myeloma and kidney disease is genuinely tricky — especially when protein restriction is part of the picture. Normally, protein is key for rebuilding muscle and regaining weight, but kidney involvement can limit how much protein is safe to eat. This is a balance that really needs guidance from both Show Full Answer

Managing weight loss with myeloma and kidney disease is genuinely tricky — especially when protein restriction is part of the picture. Normally, protein is key for rebuilding muscle and regaining weight, but kidney involvement can limit how much protein is safe to eat. This is a balance that really needs guidance from both an oncologist and a dietitian or nutritionist who understands myeloma.

Weight loss in myeloma can happen for several reasons:

- Hormone and metabolism changes caused by myeloma itself
- Loss of appetite or nausea from treatment
- A condition called cachexia, where the body burns muscle and fat unintentionally
- High calcium levels in the blood (hypercalcemia), which can reduce appetite
- Mouth sores, difficulty swallowing, or a metallic taste from treatment Some tips shared by MyMyelomaTeam members and health guidance that may help with regaining weight safely include:

- Eating small, frequent meals or snacks to keep calories up without overwhelming the system
- Finding a meal schedule that works and sticking to it
- Focusing on nutrient-dense foods rather than empty calories
- Asking your care team about kidney-friendly protein sources that still support muscle
- Discussing whether any medications could help stimulate appetite

Working closely with a dietitian who specializes in both myeloma and kidney health is really the most important step here — they can tailor a plan that addresses both concerns without putting extra strain on the kidneys.

May 28
A MyMyelomaTeam Member

Joseph, have you talked to a dietitian?

May 28
A MyMyelomaTeam Member

Jeffe, I have a love-hate relationship with Cogine and Bristol Myers Squibb, and Revelimid. I'm glad their patent ran out, and others can now manufacture and sell Lenalidomide, its generic name. Cheaper, I hope.
Revlimid made a big bunch of people into millionaires on the backs of suffering innocent people.
It got its reputation when it was called thalidomide, and women took it for morning sickness until babies were born with awful birth defects.

I think Revlimid, Velcade, and Dex.. saved my life. I'm dammed glad they took me off it and trusted my bloodwork. Since I've been free of chemo for so many years, I'm suspicious of 'maintenance.'

Once upon a time, I investigated medical professionals as a DC cop and DEA agent.

May 28

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