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A MyMyelomaTeam Member asked a question πŸ’­
San Francisco, CA
May 24
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A MyMyelomaTeam Member

Akala, If Zometa is a bone strengthener, then yes.
Kyphoplasty, after an X-ray workup of my spine, resolved the severe pain. It's an, in and out and home for dinner proceedure. I think the "cement" fills in the voids.

A week ago, I thought I was special at 16 years MM-free. Then I went online and in a few minutes found ten others, free of MM for longer than me. Stella Brown, 43 years, and Angela Hentrich, 41, were the longest.

It's self-fulfilling to spread sunshine and blue skies.

May 25
A MyMyelomaTeam Member

Hi Leslie. You’re a true inspiration.
Did you get any bone strengthening medication since 2008?
With 5” lost do you feel any stiffness?
Did your back curve forward to compensate for the loss?

My back feels very stiff and they told me one of the fractures is rubbing on a nerve going down my right leg. I still force myself to walk and stay active despite the pain. I go to physical therapy. I have a spine specialist appointment coming up to see if they can put cement to stabilize the vertebrae.

May 25
A MyMyelomaTeam Member

I had what I understood was Kyphoplasty in 2008. It ended the severe pain I was in, but did not restore the 5" I lost.

May 24
MyMyelomaTeam

Compression fractures and bone fractures are unfortunately common with myeloma, but there are several medical interventions that can help. Here's a summary of what's available:

Surgical/Procedural Options
- Vertebroplasty – bone cement is injected to stabilize the spine
- Kyphoplasty – a balloon restores height to a Show Full Answer

Compression fractures and bone fractures are unfortunately common with myeloma, but there are several medical interventions that can help. Here's a summary of what's available:

Surgical/Procedural Options:
- Vertebroplasty – bone cement is injected to stabilize the spine
- Kyphoplasty – a balloon restores height to a collapsed vertebra, then bone cement reinforces it
- Radiation therapy – can shrink tumors causing pain, treat bone lesions, and strengthen bones
- Back brace – helps stabilize the spine and reduce pressure

Medications:
- Bone-building medications like bisphosphonates or denosumab, sometimes started at diagnosis to prevent further bone damage
- Pain relievers, including opioids in more severe cases (though these carry risks like constipation and dependence)

Complementary Therapies:
- Acupuncture or acupressure
- Gentle massage
- Meditation and yoga
- Medical marijuana (where available) β€” one MyMyelomaTeam member shared it helped reduce their leg pain significantly One MyMyelomaTeam member shared that lesions pressing on a nerve in their lower back caused severe sciatica-like pain, and 10 rounds of radiation therapy resolved it completely.

Every situation is different, so it's really worth having a detailed conversation with your care team about which options suit your specific fractures or compressions. You deserve to be as comfortable as possible! πŸ’™

May 24

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