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A MyMyelomaTeam Member asked a question 💭
Bullhead City, AZ

My husband is in remission (second time). He lost a lot of weight. Has trouble eating because of foul taste of food. Tried lemons, lemon drops, miracle fruit, honey. So far, no luck.

April 17
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Reactions
A MyMyelomaTeam Member

Yes, he is still getting an infusion (sarclacia??) every 2 weeks and taking Expovio. Dr. doesn’t want to stop all meds yet but they are taking a toll on his body. His meds were stopped during his first remission, but it wasn’t long before his numbers started rising.

April 18
A MyMyelomaTeam Member

If he's in remission, is he still taking chemo drugs? I'm a case study of one, but I've been off all cancer-related drugs since 2010. Trust but verify.

April 18
A MyMyelomaTeam Member

I forgot to mention he is weak & wobbly with neuropathy and swelling in his feet due to his treatments.

April 17
A MyMyelomaTeam Member

He did try ginger & mints and has to drink 3 protein shakes per day. He forces himself to eat an egg, a sausage patty or couple bites of meat. He was told he will be bedridden in 6 months if he doesn’t eat.

April 17
MyMyelomaTeam

What can help with the foul taste of food during myeloma treatment?

The metallic or bad taste (sometimes called "metal mouth") is a common side effect of myeloma treatments. Here are some strategies that MyMyelomaTeam members have found helpful:

Practical tips
* Use plastic silverware instead of metal utensils - this can Show Full Answer

What can help with the foul taste of food during myeloma treatment?

The metallic or bad taste (sometimes called "metal mouth") is a common side effect of myeloma treatments. Here are some strategies that MyMyelomaTeam members have found helpful:

Practical tips:
* Use plastic silverware instead of metal utensils - this can reduce the metallic taste
* Try a "magic mouthwash" prescribed by your doctor to help with mouth issues
* Check for oral thrush (a white fuzzy coating on the tongue), which can cause bad taste and may need antifungal medication

Food strategies:
* Focus on foods that still taste good to him, even if they're not typical choices - as one member said, "If it tastes good, eat it!"
* Try cool or room-temperature foods rather than warm ones
* Experiment with soft or liquid foods
* Avoid eating favorite foods right before treatment sessions so they don't become associated with nausea

Additional options:
* Mint tea or peppermint gum
* Ginger candies or ginger tea
* Keep trying different foods - taste preferences can change during treatment

Since he's lost significant weight, the priority is getting calories in however possible. Consider meal-replacement shakes or protein bars if solid foods remain unappealing. Talk with his oncology team about appetite-stimulating medications if the problem persists.

April 17

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