The treatment also will be the same (DVRD). Has any one had that treatment and what was your outcome? Please share. My FISH results are back and I will get the results from that next friday-April 17th. That will determine how soon I have to start my treatments.
Nick, hope springs eternal. Multiple Myeloma has made a bunch of people into millionaires. Read ProPublica: The cost of remission. Google
Hopefully, soon a research oncologist has that eureka moment and a surefire treatment will eradicate our situation for good. I'll even settle for a prolonged remission formula (minimum 10 years before relapse) and when that happens, an effective alternative to SCT/BMT, CAR-T or the current barrage of pharmaceuticals one must injest.
Was that 4.2k is 4.2 thousand Dollars?
I too got a second opinion after being encouraged to by many, only to get the exact same answers. Maybe they being friends had something to do with it, but it seems that most just follow the same textbook protocol and run down a list of things to do when the first attempt fails since even the experts know very little about MM. They know what treatments are most effective for the majority of the population and start us all on that, not necessarily why they work, most treatments discovered by accident.
New info on Revlimid/lenalidomide.
Cost in Europe:
Revlimid (lenalidomide) is significantly cheaper in Europe than in the U.S., often costing two-thirds less in some countries. While prices vary by country, reports indicate costs around $1,000 per month (or roughly €900–€1,000) for patients, notably lower than the US, with generic alternatives now available in some European markets as of 2022.
Regional Pricing: In 2020, European prices were considerably lower than U.S. prices, with some reports showing European countries paying nearly 60-70% less.
Availability of Generics: Patent expirations in 2022 saw the introduction of generic lenalidomide in Europe, dramatically lowering costs by up to 99% in some cases.
Public Health Systems: In many European countries, the cost is largely covered by national healthcare systems, reducing the out-of-pocket burden on patients.
Example Costs: While one report in 2022 suggested roughly $1,000 per month in Europe, this can vary based on negotiated rates in specific countries like Germany or France.
The high cost in the U.S. ($20,000+ per month) is often compared to the lower, negotiated prices in the EU.
Unbelievable difference!