Leslie that’s such a crazy story. So glad things are working out for you!

Jamie, I was diagnosed with MM in 2008. Kaiser Permanente sent me to Johns Hopkins hospital, Baltimore MD, for SCT. I was rejected and on the same the phone call, the head of the program told me I had 'six months, maybe' in response to my question...In 2010 I was taken off chem, since there were no signs of MM.

I have annual bloodwork followed by a video conference with my oncologist.

I have had no cancer related drugs since 2010. No maintenance.

I'm 84, and lost both knees and 6" of spine to MM.

Trust but verify.

I would say it all depends on how aggressive your MM was in the first place and what stage they caught it before treatment. As AI stated above and I’ve also read that people who stay on maintenance drugs, (and as my oncologist says two are better than one against mutations), leads to better longevity patient results. But there are other factors to consider- how deep was your induction therapy, did you hit negative MRD or blood remission, have side effects been manageable or gotten worst, are you fatigued all the time, how’s your overall quality of life? If I had an aggressive form of MM I would stay on maintenance drugs for the rest of my life. With non aggressive MM and blood remission going on for 24 months now, I decided to take a MM drug free holiday 6 months ago. I still get monthly blood draws - hoping to go to every 2 months soon- to keep an eye on my light chains and M-spike. If my numbers start to creep up again, I plan of going back on Pomalyst and adding Darzalex Faspro or maybe even the blockbuster Tec-Dara. Not CAR-T or SCT at this point.

Be careful with this.

Many Drs only keep you on it until your numbers get down, and then do CarT

In addition to sometimes attacking your nails and sometimes your hair, it also attacks the connective tissue.

I've been experiencing all over muscle soreness and inflammation. That I blame on being on Talvey for too long.

I passed MRD and got the M-Spike back. And yet still stayed on Talvey, until I got a 2nd opinion.

I feel like at least a month of my life was wasted and extra side effects were endured for zero gain

I believe I may still be suffering from that decision