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Up until a year ago, my blood work showed low ferritin, low red cells and I would receive infusions. When it flipped to high ferritin last year, my oncologist said he would watch it. He has done nothing so far. But at my pulmonary visit last week, my doc mentioned that my blood oxygen was approaching the level where I may need oxygen. I don't want that.

March 29
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A MyMyelomaTeam Member

Amanda,
When my ferritin was high I started taking Zinc and Copper supplements and it worked. Zinc brings the levels down but also depletes Copper, hence the combination. I hope this helps. When ferritin is high, usable iron is low. I take a teaspoon of unsulphered blackstrap molasses, with 2 teaspoons of Bob’s Red Mill Nutritional yeast in milk. I have normal values now. Doctors are not trained in nutrition. When there is no medication they can give you, then nothing happens. A Nutritionist may help.
Paula🌹

March 29 (edited)
A MyMyelomaTeam Member

Amanda,
Actually I meant and Naturopath.
Paula🌹

March 30
MyMyelomaTeam

How can you naturally address high ferritin, low blood oxygen, and low red blood cells with smoldering myeloma?

Your situation with changing ferritin levels and low oxygen is concerning and requires medical attention. While natural approaches may help support your health, they shouldn't replace medical treatment for these Show Full Answer

How can you naturally address high ferritin, low blood oxygen, and low red blood cells with smoldering myeloma?

Your situation with changing ferritin levels and low oxygen is concerning and requires medical attention. While natural approaches may help support your health, they shouldn't replace medical treatment for these serious issues.

Low red blood cells (anemia) is common with smoldering myeloma and can cause the low oxygen levels you're experiencing. The shift from low to high ferritin is unusual and needs investigation, as it could indicate inflammation or other complications.

Natural approaches that may help support your health include:

* Eating a balanced, nutritious diet rich in vitamins and minerals
* Ensuring adequate intake of folate and vitamin B12 through food or supplements
* Staying well-hydrated
* Gentle exercise as tolerated to help with fatigue

However, these measures alone likely won't resolve your current issues. Your low oxygen levels and anemia need prompt medical evaluation and treatment.

It's important to advocate for yourself with your oncologist. Share your pulmonary doctor's concerns about your oxygen levels and ask specifically about:

* Why your ferritin flipped from low to high
* Whether your anemia needs treatment now
* If your smoldering myeloma is progressing
* What treatment options are available

Your body may need medical interventions like vitamin B12 or folate supplements, or potentially treatment for the underlying myeloma if it's progressing. Don't wait—reach out to your oncologist soon.

March 29

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