Hi Paula,

I completely agree about Not taking Zometa. It has too many serious consequences. Jaw death, bone pain, making bones brittle and in no way being able to repair lesions.

For sure when there’s high levels of MM Activity, bone damage is at risk but proper MM Meds, even for a short period, can eliminate this problem and allow for the body to heal, given the right conditions (minerals, vitamins, etc)

Which ones are you talking about? I’m curious to know. I’m open to nutrition and supplements. I do know Zinc helps support TP53 which is the tumor suppressor gene. There have been MM trials with Curcumin. Some take 8 grams a day. I’m intrigued when I read a paper about a woman with Stage III and took a highly diverse probiotic and was cured. My Rheumatologist insisted I needed to take Zometa, but I did not like what I read about the side effects, so I started taking Calcium, Magnesium, D3, K2, Vitamins C, A and E Complex. It’s working so well on my severe osteoporosis, I have not broken bones or gotten osteonecrosis and my fingernails need trimming often.
Paula🌹

I discussed taking supplements with my doctor awhile back and I do remember that too much Vitamin C can interfere with MM treatments. My doctor recommended that I ask my pharmacist which I did and was told 500 mg was a safe amount.

Even when I am not taking calcium, I am taking D3 and K2, hoping that the high calcium in my blood recycles back to my bones. It seems to be working. My calcium level went from high to mid-normal.
Paula🌹

But, MyMyelomaTeam AI, I'm specifically speaking of those supplements that claim to block this or that metabolic pathway in myeloma cells.