We all have different stories & different outcomes from MM. For the most part our treatments are very similar but our lifestyles vary. Most of us choose to live a more healthy lifestyle after diagnosis and that varies from patient to patient. But there is no set pattern of things to do and not do to have a positive outcome. What works for one individual doesn't work for another. So how much is just plain luck & genetics?
Answer Summary
Members opened up about the unpredictable nature of multiple myeloma, with some sharing that they abandoned strict diets and still experienced... Read more
Hello Rickhowell, I was somewhat of a health nut when I was diagnosed, I also went in the opposite direction as far as diet. I enjoyed a lot of junk foods I hadn't eaten for quite a while and my outcome has been short of miraculous.
Rick, started on 01/24 the standard pre-SCT/BMT treatment, then on 06/24 had the SCT/BMT with the nauseating melphalan, proceeded to the maintenance phase of treatment on 10/24 which is lenalidomide 10mg/Eliquis 5mg. So far they say I'm stable. I have no severe pain, I exercise, no booze, no fried foods, no processed meats. I have no underlying conditions such as diabetes, high blood pressure, hypertension etc. I guess I should be happy, but the "waiting for the other shoe to drop" factor of the inevitable relapse is always in the back of my mind. Shouldn't dwell on it so much, but that's my inherent nature. I would say that I'm not lucky (cancer & luck don't go together so well), more likely my ability to stay in shape physically is helping me get through this abhorrent situation. Mentally, it's a whole other ballgame. Can't wait to get to the beach, at least that's where I relax the most and filter out negative thoughts.
I think those that have a strong support group deal with the mental aspect better than those without one.
Yes, I try to stay up to date. It's a challenge since myeloma treatments are evolving so quickly.
Donna, you have some time with this, I am sure you have learned some about MM.
Nick, it can't hurt to help yourself even if it doesn't help it makes you feel better and maybe indirectly it helps.