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How can a person have fun again 6 months post SCT and while on Dara+len maintenance therapy?

A MyMyelomaTeam Member asked a question 💭
Crestview, FL
March 25
 · 
Reactions
A MyMyelomaTeam Member

My husband rode his bike for a 25 km trip about 3 months after his sct. He was grinning from ear to ear.

March 28
A MyMyelomaTeam Member

For those not familiar with the metric system that is equivalent to 15.5 miles!!! WOW! I'm not a bike rider, but my goal is to walk 10 miles at a good pace (probably a few stops along the way) by June. I was originally hoping for 5 miles, but I walked about 3 miles yesterday, so 10 miles in the next 3 months seems doable.
Either this: 🤩🥳 or
this: 🤢😡. We shall see.

March 29
A MyMyelomaTeam Member

Singing, listening to music, dancing, going to a botanical garden, walking in a park, enjoying the spring blooms, planning a future trip or going to the beach. I hope this gets your imagination going.💕
Paula🌹

March 25
MyMyelomaTeam

How can someone enjoy activities and have fun 6 months after stem cell transplant while on daratumumab and lenalidomide maintenance therapy?

Six months post-transplant is a great milestone, and many people are able to return to enjoyable activities while on maintenance therapy. The key is listening to your body and working Show Full Answer

How can someone enjoy activities and have fun 6 months after stem cell transplant while on daratumumab and lenalidomide maintenance therapy?

Six months post-transplant is a great milestone, and many people are able to return to enjoyable activities while on maintenance therapy. The key is listening to your body and working within any limitations you might have.

Lenalidomide is generally well-tolerated, which helps make daily life more manageable. However, some common side effects to be aware of include:

* Fatigue
* Diarrhea or constipation
* Muscle cramps
* Swelling in arms or legs
* Insomnia

These can affect energy levels and comfort during activities. Planning activities around when you feel best during the day can help. If fatigue is an issue, shorter outings or activities that don't require sustained physical effort might work better.

Stay connected with hobbies you enjoy - whether that's music, movies, reading, or spending time with loved ones. A MyMyelomaTeam member shared bringing pictures, music, movies, and books during their transplant recovery, which shows how important these connections remain.

It's important to discuss any side effects with your healthcare team. They can often help manage uncomfortable symptoms, making it easier to participate in activities you love. If certain side effects are limiting your quality of life, your doctor may be able to adjust your treatment approach.

Remember to avoid crowds or people who are sick, as your immune system may still be recovering. Choose activities that minimize infection risk while still bringing you joy.

March 25
A MyMyelomaTeam Member

@A MyMyelomaTeam Member
Depends what you call fun. 🤔
What did you enjoy doing before diagnosis and treatment?

March 25

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