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A MyMyelomaTeam Member asked a question đź’­
West Monroe, LA

Diagnosis in 2019. Presently on Relimid 5mg and Daralex Faspro 1800 mg.

March 15
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Answer Summary

Members connected over the shared frustration of dealing with a constantly runny nose while living with multiple myeloma, with many... Read more

Members connected over the shared frustration of dealing with a constantly runny nose while living with multiple myeloma, with many attributing it to weakened immune systems from treatment or specific medications like Revlimid and Teclistamab. Several members shared practical strategies that help them manage symptoms, including daily antihistamines like Claritin, Benadryl, or Zyrtec-D, nasal sprays like Flonase or saline rinses, and immune-supporting foods like oranges, apples, and kiwi. A recurring theme was acceptance that this side effect is common and sometimes just has to run its course, balanced with proactive self-care and open communication with doctors to find relief without compromising other health concerns.

A MyMyelomaTeam Member

Fluticasone, Claritin-D (12 hour), Benadryl help somewhat. My nose was leaking so badly a few weeks ago, I should have bought stock in Kimberley-Clark as I used boxes of tissues. Sometimes it just has to run its course. Better than my profusely bleeding right nostril for almost two weeks. Ended up at my ENT and she cauterized it. Truly disgusting.

March 18
A MyMyelomaTeam Member

Hi @A MyMyelomaTeam Member. I used to be on Revlimid and did not experience what you describe. However, I am currently enjoying a deep response from Teclistamab and Talquetamab. Because my immune system was so suppressed, I had a lousy winter with the most stubborn bronchial and sinus infection I've ever had. It is improved now, except for a constantly dripping nose. Very annoying. Benadryl is the only thing that actually works well, but I do limit it for cardiac purposes. Talk to your doctors about carefully using Benadryl.

March 18
A MyMyelomaTeam Member

I am not on Revlimid anymore, Dr's felt it was responsible for my bi lateral neuropathy in extremities.

I started needing tissues most of day after being placed on C-Pap at night with 2 liters of O2

March 15
A MyMyelomaTeam Member

My husband has a Kleenex handy as well. He is on 5 mg revlimid as maintenance.

March 15
A MyMyelomaTeam Member

Hello Joseph. I'm pon my very first chemo right now and doing radiation all this week. In reading I come to know that MM is hard on our immune system. So I'm incorporating diet and life style to deal with that fact. So it's our fight. Proper defense is our choice. Feel better and find your Joy for peace and strength. 🙏
Henry Nuñez

March 15

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A MyMyelomaTeam Member asked a question đź’­
West Monroe, LA