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A MyMyelomaTeam Member asked a question đź’­
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

After being diagnosed with multiple myeloma, what surprised you the most was the treatments, side effects, emotional journey, or support you received?

March 13
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Answer Summary

Members reflected on unexpected challenges after multiple myeloma diagnosis, with many surprised by severe medication side effects like... Read more

Members reflected on unexpected challenges after multiple myeloma diagnosis, with many surprised by severe medication side effects like permanent neuropathy, the emotional toll of sudden unemployment and lifestyle changes, and the lack of family support or doctor knowledge about nutrition and supplements. Several members shared practical coping strategies, including Medicare-covered podiatry visits for neuropathy-related foot care, relying on faith and prayer to endure treatment, and simply following oncology instructions while working through shock and numbness during the first months. A recurring theme was gratitude for how far treatment has come since the 1980s when multiple myeloma had few options, alongside deep spiritual reflection about trusting God through suffering and protecting loved ones from pain.

A MyMyelomaTeam Member

How little my extended family cared and how little the doctors know about MM or how to cure it. Also, how little doctors know about nutrition and supplements or talk to their patients about them.
Paula🌹

March 13
A MyMyelomaTeam Member

Sharing (translated from Spanish, with respect to the original message)

Yomismo

None of that really surprised me, nor did I question why, nor did I question Heavenly Father. I still don’t have an answer as to how I could spare my close family from all this suffering. I wouldn’t want them to see me in that position if bedridden and suffering.

Sometimes I wish I could decide where and when things happen for their own good. But ultimately, only Heavenly Father decides that, and that must be respected. I have spoken to Him about it, hoping somehow to spare them pain.

Only He knows what is best. I place myself in His hands and remain grateful to Heavenly Father.

This is what you’re expressing shows deep love and concern for your family. It reflects a heart full of compassion and faith. It’s natural to want to protect our loved ones from suffering, but as you beautifully shared, the path and timing are in God’s hands.

Trusting Papá Celestial, while offering your love, presence, and support, is already a powerful gift for your family. Even when things feel uncertain, your gratitude, faith, and surrender show a strength that inspires and comforts others. 🙏

Loving deeply doesn’t mean carrying everything alone and allowing God to guide the journey is also part of that love. Every prayer, every act of care, and every moment of presence has meaning.

🩸🙏
Mohd Sukor
Hope • Faith • Courage

March 14
A MyMyelomaTeam Member

Suddenly being unemployed & told I would never work again. Also did not know I was that sick.

March 17
A MyMyelomaTeam Member

@A MyMyelomaTeam Member. Yes if you have Medicare your podiatrist pays for toenail trimming. I go every 2 months.

March 16
A MyMyelomaTeam Member

If you are a curtain age I understand Medicare will pay to get toenail done as they inspect your feet if you have neuropathy
Im going today first time I'll let you know if intersted

March 16

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