After being diagnosed with multiple myeloma, what surprised you the most was the treatments, side effects, emotional journey, or support you received?
Answer Summary
Members reflected on unexpected challenges after multiple myeloma diagnosis, with many surprised by severe medication side effects like... Read more
How little my extended family cared and how little the doctors know about MM or how to cure it. Also, how little doctors know about nutrition and supplements or talk to their patients about them.
Paula🌹
Sharing (translated from Spanish, with respect to the original message)
Yomismo
None of that really surprised me, nor did I question why, nor did I question Heavenly Father. I still don’t have an answer as to how I could spare my close family from all this suffering. I wouldn’t want them to see me in that position if bedridden and suffering.
Sometimes I wish I could decide where and when things happen for their own good. But ultimately, only Heavenly Father decides that, and that must be respected. I have spoken to Him about it, hoping somehow to spare them pain.
Only He knows what is best. I place myself in His hands and remain grateful to Heavenly Father.
This is what you’re expressing shows deep love and concern for your family. It reflects a heart full of compassion and faith. It’s natural to want to protect our loved ones from suffering, but as you beautifully shared, the path and timing are in God’s hands.
Trusting Papá Celestial, while offering your love, presence, and support, is already a powerful gift for your family. Even when things feel uncertain, your gratitude, faith, and surrender show a strength that inspires and comforts others. 🙏
Loving deeply doesn’t mean carrying everything alone and allowing God to guide the journey is also part of that love. Every prayer, every act of care, and every moment of presence has meaning.
🩸🙏
Mohd Sukor
Hope • Faith • Courage
Suddenly being unemployed & told I would never work again. Also did not know I was that sick.
@A MyMyelomaTeam Member. Yes if you have Medicare your podiatrist pays for toenail trimming. I go every 2 months.
If you are a curtain age I understand Medicare will pay to get toenail done as they inspect your feet if you have neuropathy
Im going today first time I'll let you know if intersted