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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

His biggest concern is a body rash that he gets from the remlivid, will they lower the dosage or stop altogether

March 11
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A MyMyelomaTeam Member

Tell your doctors everything. Every side effect means something, so be sure to tell them...even if you have to contact them via email because your next appointment is too far off.

March 11
A MyMyelomaTeam Member

Have you talked to your Oncologist about the rash? They may have some suggestions for him.

March 11
A MyMyelomaTeam Member

Go to the Celgene website to see side effects. I have had many and am grateful for the drug keeping me in Complete Response remission. It is not always convenient, but it works. Ty he multiple myeloma research and development community is developing new treatments all the time.

March 11
A MyMyelomaTeam Member

Trisenox , Arsenol and Phenasan all cure Myeloma - they are 5.00 mgm ARSENIC TRIOXIDE tablets - The Chinese have used them for hundrds of years- TRISENOX is now approved for use at our Fremantle Hospital , in Western Australia , but the treatment is much cheaper in China ???

Stay Well- Alex .

March 28
A MyMyelomaTeam Member

Shery, each person is different, but, I was given six months in 2008. I was off ALL Chemo in 2010. I've been off since. then. MM did cost me two knees and 6" of spine. Trust, but verify, INDEPENDENTLY. Google pro publica the price of remission

March 20

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