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Hi Mohammad @A MyMyelomaTeam Member - thank you for being such an inspiration on this site. Every time I read anything you write it is upbeat, empathetic, and understanding. Grateful to people like you who can share and uplift others. Best, Debi
@DebiNorten
Thank you for your kind words.🙏
It’s means a lot to know sharing information and experiences can uplift and encourage others, who still new and need help with this disease.What we need is to encourage all the myeloma members to adapt to the conditions and myself before I joining this group l know nothing about MM and it has been 2 years l with this group and I think that nothing l can help but to give them support and inspiration
We’re all on this journey together, and every story, every step forward, inspires hope. Keep believing in the small victories and the progress being made every day. ✨
We may be at different times and places in our lives, but Multiple Myeloma has brought us together.
Through sharing questions, answers, and experiences, we learn from each other, support one another, and grow stronger as a community. Every story and every insight matters — it reminds us that we are never truly alone in this journey. ✨
🩸🙏
Mohd Sukor
Hope • Faith • Courage
Guided by God
Many patients ask this question when they reach remission. Both Velcade (bortezomib) and Ninlaro (ixazomib) belong to the same class of drugs called proteasome inhibitors, but they are used a little differently.
One key difference is convenience. Ninlaro is taken as an oral pill, while Velcade is given as an injection at the clinic. And this makes Ninlaro easier for long-term maintenance therapy.
The side effects that most patients experience less peripheral neuropathy with Ninlaro compared with Velcade, which is why doctors may consider switching if nerve pain becomes an issue.
Clinical studies have also shown that ixazomib maintenance can help extend remission for certain patients. However, it still has its own possible side effects such as low platelets, fatigue, nausea, or diarrhea.
The good news is that reaching early remission is already a strong step forward. Today we have more treatment options than ever before to help maintain long-term remission and quality of life.
I’m curious as well as for those who have used Ninlaro for maintenance, how has your experience been so far?
Progress in myeloma is happening every day. Every new treatment brings us one step closer to a cure.
🩸🙏
MohdSukor
Hope • Faith • Courage
Guided by God
Are you considering switching from Velcade (bortezomib) to Ninlaro (ixazomib) during your early remission?
Ninlaro is an oral proteasome inhibitor, similar to Velcade but taken by mouth instead of injection. This can be more convenient since it means fewer clinic visits. It's often used in combination with lenalidomide and Show Full Answer
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