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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Spain
February 13
 · 
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A MyMyelomaTeam Member

Kay,
Have you started treatment? Many people start treatment at Stage III and do very well. It’s important that your Hematologist/Oncologist is a MM Specialist.
Paula🌹

February 13
A MyMyelomaTeam Member

Kay,
It good to know the lesions have not changed and you are in treatment. Many people have this. My cousin did and he has had MM for years and years. Depending on your remission, the doctor may be able to cut back the dose of maintenance, to make your life more comfortable.
Paula🌹

February 14
A MyMyelomaTeam Member

Thank you for your concern. I have been diagnosed in 2021, stage 1, I have had chemo, a transplant and now on a clinical trial. I am in remission but on a monthly maintenance treatment which is heavy. The latest CT scan showed lesions in both spine, hence my back pain and in my skull. But they have not expanded since the previous CT scan. Just curious to know whether other patients have lesions and what to expect.

February 14
MyMyelomaTeam

What happens when multiple myeloma progresses?

Multiple myeloma doesn't typically metastasize (spread) like solid tumors do. Instead, it progresses by affecting more areas of your bone marrow and causing complications throughout your body.

When myeloma advances, you may experience several serious complications:

Bone and Show Full Answer

What happens when multiple myeloma progresses?

Multiple myeloma doesn't typically metastasize (spread) like solid tumors do. Instead, it progresses by affecting more areas of your bone marrow and causing complications throughout your body.

When myeloma advances, you may experience several serious complications:

Bone and calcium issues:
- Weakened bones that can press on spinal nerves
- High calcium levels in your blood (hypercalcemia), which can cause confusion, nausea, and in severe cases, affect heart function

Blood-related problems:
- Thickened blood from too many proteins, causing dizziness, blurry vision, and headaches
- Severe anemia leading to extreme fatigue and shortness of breath

Nerve damage:
- Peripheral neuropathy with tingling, numbness, or burning pain in your limbs
- In rare cases, spinal cord compression requiring immediate medical attention

Other complications:
- Increased risk of infections due to weakened immune system
- Kidney problems
- Amyloidosis, where abnormal proteins build up in organs

If you notice sudden symptoms like intense back pain, numbness in your legs, or significant changes in your condition, seek medical attention right away.

February 13

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A MyMyelomaTeam Member asked a question 💭
Blountville, TN